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What treatments have you tried for COPD? What works for you?
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Nickolas7
Nickolas7
Last activity on 09/24/2020 at 8:43 PM
Joined in 2020
Cost is a major factor when considering inhalers. My insurance even denied a pre approval for Trelegy. I was on Symbicort to begin with and they stopped issuing discount coupons. I then went on Breo and the same thing happened so my doctor prescribed Trelegy but as I have said, my insurance denied me and I can't afford the cost. (in excess of 400+ dollars) So, I looked high and low for an affordable copay. I found Airduo and a coupon on GoodRx and can now afford an inhaler.
Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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1,340 comments posted | 30 in the COPD Forum
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Hi everyone,
How are you doing today? Have you seen this older discussion?
What treatments have you tried for COPD? Have you tried inhalers or oral medications? What has worked for you? Are there any treatments or medications that haven't worked for you?
@12randall @Gpacs3 @angelicabender5915 @Bb1954wv @SandraSue @davisjane70 @JohnAbreedlovejr @Barbara55 @Dreamcatcher63 @nhangel @CMelK4RE @dmm238 @Nanato4girls @Tyler1996 @Golfgirl @BrerRabbit
Feel free to share any experiences or advice here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
CMelK4RE
CMelK4RE
Last activity on 11/27/2021 at 5:28 PM
Joined in 2021
1 comment posted | 1 in the COPD Forum
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I'm a 78 year old male. Diagnosed with COPD about 10 years ago. Been on inhalers (ADVAIR and SPIRIVA) since then. Also use ALBUTEROL when needed. Breathing difficulty has gotten worse over time and is definitely impacting lifestyle. Are meds working/helping? I assume so. Have asked doctors about changing/adding meds and they don't think it's needed.
Nancy2020
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Nancy2020
Last activity on 06/14/2022 at 4:38 AM
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I have used Symbicort , Spiriva Respimat ,Spiriva Handihaler, now I’m on Trelegy. I ask my doctor if I can change every time a new one comes out they all worked for me just wanted to try what was better
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Nancy2020
COPDme
COPDme
Last activity on 04/07/2021 at 10:28 PM
Joined in 2021
I'm relatively new to COPD, so for now I've only been on brochodilators (Spiriva as maintenance, albuterol when needed) and some low-dose steroids for when I have a bad flare. I did pulmonary rehab too at the beginning to help me handle COPD and it really helped.
kaderaahin
kaderaahin
Last activity on 09/07/2022 at 6:11 AM
Joined in 2022
9 comments posted | 7 in the COPD Forum
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Am from Jordan, I was diagnosed with Emphysema (COPD) in 2013 and I have tried all possible means to get cured. I even visited a pulmonologist but to no avail, until I saw a post in a health forum about a herbal clinic from China that prepares herbal medicine to cure all kinds of diseases including COPD and Emphysema. At first, I doubted if it was real but decided to give it a try, when I contacted this herbal doctor via the website which I got an email from them, they sent me the Emphysema herbal formula through courier service, and when I received this herbal medicine they gave me step by step instructions on how to apply it. I applied it as instructed I was totally cured of COPD Emphysema within almost five months of usage. You can as well Contact them on multivitamincare .org or (Call/SMS): +1 -956- 758-7882Kind Regards
LizziB
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LizziB
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Last activity on 04/21/2024 at 8:17 PM
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603 comments posted | 10 in the COPD Forum
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Hello everyone,
@Nickolas7 @CMelK4RE @Nancy2020 @COPDme @kaderaahin
How are you doing today?
I see there were some responses in this discussion about various medications. I am writing to update you with a new feature on Carenity that you can take part of. You can leave your opinion of your medication and treatments here: https://member.carenity.us/medications
Simply search the name of the drug or the condition and follow the prompt. By sharing this knowledge all in one place, Carenity members will be able to easily search for medication and read reviews. Then they will be armed with the right questions to ask their doctors when considering new medication 💪
Take care,
Lizzi from the Carenity team
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LizziB
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
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The medications for COPD are varied, depending on several factors. Many types of mediations include bronchodilators, inhaled steroids, supplemental oxygen, and even antibiotics (if there is an infection present).
What is your experience with medications in the treatment for COPD?
How long have you had COPD and what was is its etiology?
What medications have you tried or are currently using? Any success with the treatment / control of your COPD diagnosis and symptoms?
Any side-effects? Would you recommend it?