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Deep Brain Stimulation (DBS) for dystonia
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LizziB
Community managerGood advisor
LizziB
Community manager
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
605 comments posted | 1 in the Dystonia Forum
24 of their responses were helpful to members
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Hi @help11
How are you today?
Have you talked to your doctor about the DBS procedure? What did they say? I think this would be valuable information to share to the group. I will tag a few others to see if they have tried DBS treatments.
@KezFlynn.Jockland @miixchuu @huhuiiui @toostybeat @Doug792 @benlesser65 @kowalskijan79o2.pl @sharper22 @kilince @Leonso @helloworld @yamarolorg @Jamiemomma @Kumba282 @rumblefish7194 @ycatstx @mongoose @Nick_Hodo @Helge11 @Poolmarcus @mimoon @dystoniapatient @nanner @Emy2020 @Rav966 @Sunbeam @madalena @Jaytwothree
Has your doctor prescribed Deep Brain Stimulation (DBS) for dystonia? Did you have the procedure? What did you think? What were the results? What were the side effects?
Share your experiences!
Take care,
Lizzi
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help11
help11
Last activity on 11/21/2022 at 4:10 PM
Joined in 2019
10 comments posted | 9 in the Dystonia Forum
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Has anyone tried Deep Brain Stimulation (DBS) for their dystonia condition? I know it is normally used to treat Parkinson's and Alzheimers but could it help for dystonia too? I have tried botox injections, that seem to make it be ineffective but have made my skin soo weird. Maybe because I am not used to such smooth skin. Anyways does anyone have any information on this procedure-DBS?