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Do others understand what we go through?
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curtaincall
curtaincall
Last activity on 11/29/2022 at 2:26 PM
Joined in 2018
37 comments posted | 17 in the Fibromyalgia Forum
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@toomuchpain nobody who is not diagnosed with fibromyalgia or has a loved one diagnosed with it, truly believes what we are going through - that is my opinion anyways. I know doctors and therapists who do not even believe it and just feel we are faking! It is hear breaking!
I know what I am going through and what my body feels and what my mind senses... that is all that matters and all I Can do is take care of myself and not worry about making others believe me.
Do not stress them. If it is a loved one... that is a different story, but even then you cannot allow them to affect you.
toomuchpain
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toomuchpain
Last activity on 10/18/2022 at 6:00 PM
Joined in 2018
35 comments posted | 18 in the Fibromyalgia Forum
1 of their responses was helpful to members
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thank you for sharing curtaincall. I try not to stress about it; I feel that education on this condition among others and doctors and medical practitioners is very important.
fibrome
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fibrome
Last activity on 02/23/2024 at 12:23 PM
Joined in 2019
22 comments posted | 12 in the Fibromyalgia Forum
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@toomuchpain Probably one of the more difficult things with fibromyalgia... since we do not have a physical ailment that is visible to others, people tend to not understand what we go through. I used to work at Macy's years ago and had a co-worker who had myofascial pain or fibromyalgia - I honestly can't remember - but she had to call off occasionally because the pain was unbearable to her, but at work she looked normal to everyone. And everyone would say she was faking and just a complainer or not a hard worker when she would call off. I was never one of those people, but I heard about it often as I worked in the department. Fast forward about 15 years, and now I have fibromyalgia and I can only imagine what people think or say about me because I look normal from the outside by on the inside I am nagging in pain.
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Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
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MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
Armor2
@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN
See the best comment
MountainMan
Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.
See the best comment
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toomuchpain
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toomuchpain
Last activity on 10/18/2022 at 6:00 PM
Joined in 2018
35 comments posted | 18 in the Fibromyalgia Forum
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Hi guys, I am new here and a thing I have difficulty with is being in pain everyday and not feeling understood by others... sometimes others even feel that I am not really sick / in pain and that I am faking... does anyone else go through this?
I am in pain everyday... when I wake up my elbows and shoulders and nerves feel intense pain. I do not look disabled to others, but somedays, even lifting a pencil, can cause me great pain.
Does anyone suffer this? How do you deal with it?