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What is your fibromyalgia story? Let's share!

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Courtney_J

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07/16/2020 at 12:00 AM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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1,340 comments posted | 22 in the Fibromyalgia Forum

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Hello everyone,

How are you feeling today? emoticon cute

I thought I would open this discussion so we can all get to know one another better!

So, what is your fibromyalgia story? How and when were you diagnosed? What symptoms did you have that led to your diagnosis? How are you doing today? What medications or treatments have you tried? Do you have any advice to share with someone newly diagnosed with fibromyalgia?
@Drfootball‍ @SabinaYetta52‍ @Dragonfly‍ @Shanaynay‍ @user_d296c_ci8hfbz1‍ @dingalingas‍ @crkjkk‍ @tlester451‍ @NettyJ‍ @Samedu08‍ @LADYDAAI‍ @Jen-ny‍ @Vickijustvicki‍ @Carlysm‍ @sweetladyjayne‍ @KristinaH92‍ @Marybeth‍ @Shellibelli‍

Feel free to introduce yourself and share your story here!

Take care,
Courtney

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toomuchpain

07/17/2020 at 5:07 PM

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toomuchpain

Last activity on 10/18/2022 at 6:00 PM

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35 comments posted | 18 in the Fibromyalgia Forum

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@Courtney_J Hi, I went through quite a journey to get my diagnosis. I went to several doctors before I could get anyone to really listen to me. They tested me for rheumatoid arthritis, osteoarthritis, and neuropathy but obviously that wasn't it. They kept suggesting that it was all in my head and one doctor even told me to go see a psychologist. Eventually I found a great doctor who took the time to listen and after some more tests I got my diagnosis. But then when I was finally diagnosed some people in my family like wouldn't believe that I had a real, diagnosable condition, they still thought I was making it all up! Such is the plight of chronic illness patients I guess. Just because you can't see my illness doesn't mean it doesn't exist!

What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229 2020-07-17 17:07:51

pinsnneedles

08/11/2020 at 4:46 PM

pinsnneedles

Last activity on 06/23/2022 at 4:05 PM

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4 comments posted | 4 in the Fibromyalgia Forum

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@toomuchpain Wow you've just described my experience to a t! When I was finally diagnosed with it my doctor explained that there is so that isn't understood in fibro that it can be hard to diagnose. I have some pretty bad neuropathy, and apparently in fibro cases the nerve damage isn't visible, so doctors used to have the tendency to think it was psychosomatic. Right now I'm on Cymbalta but I'm looking into alternatives.

What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229 2020-08-11 16:46:30

SabinaYetta52

08/14/2020 at 3:26 AM

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SabinaYetta52

Last activity on 10/30/2024 at 12:00 AM

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14 comments posted | 4 in the Fibromyalgia Forum

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Hi, I am newly diagnosed with Fibromyalgia and Neuropathy. I was initially diagnosed with MS in 2013. I was completely shocked that I was misdiagnosed. I constantly live with numbness and chronis pain. With medication and some lifestyle changes things have been somewhat better. I have had both good and bad days. I have found ways to make things easier for me. I taken up crocheting.

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Sharyn

What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229 2020-08-14 03:26:18

toomuchpain

01/14/2021 at 6:40 PM

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toomuchpain

Last activity on 10/18/2022 at 6:00 PM

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35 comments posted | 18 in the Fibromyalgia Forum

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@SabinaYetta52 Wow I'm sorry that you were misdiagnosed! That must have been a roller coaster of emotions for you. What kind of lifestyle changes have you made, if you don't mind sharing? I'm open to trying anything at this point!

What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229 2021-01-14 18:40:34

SabinaYetta52

01/15/2021 at 3:47 AM

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SabinaYetta52

Last activity on 10/30/2024 at 12:00 AM

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@toomuchpain Hi and yes it was a Rollercoaster of emotions for me. Some of the lifestyle changes I made were mainly diet changes. I am gluten free now as gluten makes my psoriasis worse and I get very itchy. I also cut a lot of soda. I ordered Cirkul water and now I drink more water than I have before. I am on medication which help my anxiety. I also have been walking a little more accept when I am in the I use a scooter to get around. I have also found ways to relax better by reading, doing puzzle books, and I have taken up crocheting. I hope this has answered your question.

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Sharyn

What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229 2021-01-15 03:47:49

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Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

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MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

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dan.varady

Ambassador

10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

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Armor2

05/13/2023 at 5:38 PM

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MountainMan

Edited on 03/25/2021 at 8:23 PM

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dan.varady

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10/17/2023 at 2:30 PM

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