- Home
- Share
- Forum
- Hodgkin lymphoma Forum
- Living with lymphoma
- What is your lymphoma diagnosis story? Let's share!
Patients Hodgkin lymphoma
What is your lymphoma diagnosis story? Let's share!
- 25 views
- 1 support
- 3 comments
All comments
suzie1
suzie1
Last activity on 01/02/2023 at 2:14 PM
Joined in 2019
13 comments posted | 7 in the Hodgkin lymphoma Forum
Rewards
-
Contributor
-
Messenger
-
Explorer
@Courtney_J Hi, I was diagnosed with diffuse large B-cell lymphoma (DLBCL) about a year ago. I was having really bad night sweats and some pressure in my chest, and then I noticed a lump in my armpit. I went through about a million tests it felt like and they found it had spread. I went through a few rounds of R-CHOP (a lovely mix of chemo drugs) and today I'm in remission!
TinaLymph
TinaLymph
Last activity on 09/15/2021 at 11:24 PM
Joined in 2021
3 comments posted | 3 in the Hodgkin lymphoma Forum
Rewards
-
Explorer
I was diagnosed with non-hodgkin's follicular lymphoma in March this year, completely by accident, after a referral for stomach in January.
I don't really have symptoms, so it was a total shock when they told me that they saw enlarged lymph nodes on the CT scan and that I needed an urgent biopsy. The biopsy came back with stage 3A NHFL. I was and still shocked. In the day-to-day I don't really have any symptoms at all other than feeling more tired that usual and night sweats. I'm not in treatment because it's a slow-growing cancer so we're just watching to see how/if it develops.
AuntieDebba
AuntieDebba
Last activity on 07/10/2022 at 5:00 AM
Joined in 2022
3 comments posted | 3 in the Hodgkin lymphoma Forum
Rewards
-
Explorer
Early 2020 I noticed a bruise look on my forehead. No pain. I woke up and my tight eye wouldn't open. Had biopsy results positive for non Hodgkin's follicular lymphoma. Did 6 Chemo treatments and followed up with many radiation treatments two times per day for 5 days.. I believe 3 weeks of that. The day they said it was gone I had another one show on my left side of the neck and then another a couple days later on the right side. This time they started with the radiation once a day for many weeks 5 days per week and am now going through another chemo series of 6 treatments. My doctor says it is now aggressive
See the signature
Deborah Rock
Give your opinion
Members are also commenting on...
DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
Articles to discover...
01/19/2022 | Testimonial
Stiff person syndrome (SPS) and Hodgkin's lymphoma: "They had never seen a case like mine!"
09/15/2021 | News
World Lymphoma Awareness Day: Symptoms, causes, diagnosis and treatment
07/09/2020 | Testimonial
Hodgkin's Lymphoma: Staying Active and Positive through Treatment
10/03/2019 | Testimonial
Hodgkin lymphoma: symptoms, chemotherapy, nutrition and family support
01/15/2019 | News
02/04/2019 | News
07/12/2019 | Nutrition
12/21/2024 | Nutrition
Anti-fatigue foods: How can you boost your energy naturally?
Subscribe
You wish to be notified of new comments
You have been subscribed
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 6 in the Hodgkin lymphoma Forum
6 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hello everyone,
How are you today?
I thought I would create this discussion so we can all get to know one another better!
So, what is your lymphoma diagnosis story? Do you have Hodgkin's or non-Hodgkin's lymphoma? When and how were you diagnosed? What symptoms were you having that let you know something was wrong? What treatments have you undergone? How are you doing today?
@Hind97 @moshiro @Jacobrock25 @Cposter63 @Nitahiggins @Tuesday112 @Byrd1965 @Jesusag85 @Alice_89 @Michelle413 @Sammygirl @Brenton1992 @Jtinkshell @Char26 @thepatientstory @Gary'sgirl @Christopher
Feel free to share your story with us here!
And if you haven't seen it already, @Driggs09 just recently shared his story with us in a testimonial! You can read it here: Hodgkin's Lymphoma: Staying Active and Positive Through Treatment
Take care,
Courtney