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Patients Hodgkin lymphoma
Have you experienced lymphedema from your lymphoma treatments?
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Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 6 in the Hodgkin lymphoma Forum
6 of their responses were helpful to members
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Hello,
This discussion in Living with cancer has been moved because we think it will elicit more responses from this group: Symptoms and complications of lymphoma.
Have a great day,
Courtney_J from the Carenity Team
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Courtney_J, Community Manager, Carenity US
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 6 in the Hodgkin lymphoma Forum
6 of their responses were helpful to members
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Hello @sixfour, thank you for sharing with us! Has the lymphedema been brought on by your WM? Are the compressions helping?
Has anyone else experienced lymphedema with your lymphoma treatments? How did you treat it? Did you use compression bands or socks? What helped you the most?
@Georgette53 @Jen807 @Brouno @GeorgetteCollins @Driggs09 @Tikitabby @Hind97 @missd010347 @neosco9 @Pitabito @Leahplacketroutman @Pattp1 @SandraH @Stacabirda @Michelle413 @The6ofme @Sammygirl @Brenton1992
Feel free to share any experiences or advice here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
Leahplacketroutman
Leahplacketroutman
Last activity on 10/24/2021 at 10:33 AM
Joined in 2021
1 comment posted | 1 in the Hodgkin lymphoma Forum
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I haven’t had any issues at this time!
Maryellen
Maryellen
Last activity on 10/15/2022 at 4:25 AM
Joined in 2018
7 comments posted | 3 in the Hodgkin lymphoma Forum
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What is lymphoderma?
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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sixfour
sixfour
Last activity on 10/08/2021 at 7:04 PM
Joined in 2021
5 comments posted | 1 in the Hodgkin lymphoma Forum
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I have compression wrapping on by left arm and both feet and legs to stimulate lymph drainage.