To take the medicines or not to take the medicines ?

TO ALL OF US WHO HAVE A DISEASE, THAT NOT MANY PEOPLE, DO NOT KNOW ABOUT!!!  (SYSTEMIC LUPUS) MANY PEOPLE GET A HARSH QUICK AWARENESS IF, THEY HAVE LUPUS OR SOMEONE IN THEIR FAMILY HAS LUPUS.!! NOT MUCH MONEY IS GOING INTO AWARENESS. I ALWAYS THOUGHT THAT AWARENESS IS AS IMPORTANT AS RESEARCH. WHY,

NOT MANY PEOPLE WLL DONATE FOR RESEARCH IF THEY NEVER HEARD OF LUPUS. YES, OVER THE YEARS MANY PEOPLE AND SOME PUBLIC AWARENESS HAS HAPPENED. IF IS UNFORTUNATE, IT IS NOT A MEMBER OF THE "DISEASE OF THE MONTH CLUB, I CALL IT"..... THEY SAY: "DO YOU KNOW SOMEONE WITH LUPUS, OR LUPUS THE PART OF ARTHRITIC PAIN.

IMAGE, IF YOU KNOW SOMEONE THAT HAS LUPUS, THEY ARE TOO SICK TO HELP IN THE PUBLIC AWARENESS SECTION OF PUBLICITY.

I HAVE DONE AS MUCH AS I POSSIBLY CAN IN SOUTHERN CALIFORNIA AND IT IS STILL NOT ENOUGH. IN MY NECK OF THE WOODS, I ALWAYS MEET SOMEONE THAT SAYS " I HEARD OF IT BUT, I DO NOT KNOW ABOUT IT"!!!!!!! THAT KILLS ME WHEN I HEAR THAT STATEMENT. I HAD SHARED A HOSPITAL ROOM WITH AN ITALIAN LADY  WHO SPOKE NO ENGLISH.(1990'S) I ATTEMPTED TO TRANSLATE TO ENGLISH FOR THE NURSES. I BRUSHED UP ON MY ITALIAN QUICKLY!!! THAN THE LADY PASSED AWAY AND HER SON CAME INTO THE ROOM.. HE SAID "THANK YOU FOR MAKING MY MOTHER;S LAST DAYS MORE COMFORTABLE, CAN I DO ANYTHING FOR YOU. CAN I PAY YOU.   HE SAID IN WORKED AS A PRODUCER FOR CHANNEL 2 AND 11 IN CA. I SAID YES, PLEASE CAN YOU PLACE A COMMERCIAL FOR LUPUS AWARENESS?? HE SAID "YES"!!

I WAS THRILLED!!! HE HAD MINNIE PEARL DO A 1 MINUTE COMMERICAL ON "DO YOU KNOW SOMEONE WITH LUPUS?" IT WENT SO QUICKLY!! I WONDERED IF ANYONE HEARD IT OR KNOWLEDGE GAINED FROM THE PUBLIC.. WELL, MY NAME WAS EXPOSED, IF ANYONE CALLED THE TV STATIONS. I GUESS THAT WAS BETTER THAN NOTHING. VERY RARE THESE DAYS YOU HEAR ABOUT SYSTEMIC LUPUS ON ANY PUBLIC TV OR RADIO. I THOUGHT THIS WAS BETTER THAN NOTHING. NOW, TODAY 2019, I HAVE BEEN SO SICK. I HAD TO STOP ALL LUPUS SUPPORT GROUP MEETINGS. I TOOK RESPONSIBILITY FOR AWARENESS IN ONTARIO, ALTA LOMA AND THE LOCAL AREAS. THE HELP WAS VERY LITTLE WITH THE ARTHRITIC FOUNDATION. IT WAS BETTER THAN NOTHING. I ONLY WISH THAT SOME PEOPLE THAT WERE IN HOLLYWOOD WOULD COME FORWARD. EXAMPLE

RICHARD DRYESS, HIS WIFE HAS LUPUS, AND SOME OTHER PEOPLE IN THE LIME LIGHT.  SO, HERE I AM LIVING IN A PLACE I NEVER THOUGHT I WOULD BE. RANCHO CUCAMONGA, CA . I USE TO VIEW A CARTOON ON TV WITH A COWBOY NAMED SAM ON A RAILWAY SAYING "NEXT STOP IS 

RANCHO CUCAMONGA"!! WHO WOULD KNOW I AM NOW A RESIDENT OF THIS CITY.  I HAVE ATTEMPTED TO ASSIST AS MANY PEOPLE AS POSSIBLE. MY THOUGHTS WERE " I HAVE BEEN BLESSED TO GET SOME LAW SCHOOL UNDER MY BELT. NOW HOW AM I GOING TO USE IT"?  I HAD MEETINGS IN THE AREA, AT HOSPITALS UNTIL WE HAD NO ROOM FOR THE PEOPLE TO SIT. SEATING WAS LIMITED AND PEOPLE WERE IN THE HALLWAYS OF THE HOSPITAL CAFETERIA.  THAN IT HAPPENED, I GOT SO SICK AND I HAD TO STOP ALL THE MEETINGS. THE PERSON THAT HELPED ME, ALSO HAD LUPUS ALONG WITH HER SON--2 PEOPLE IN THE SAME FAMILY, MOTHER AND SON WITH SLE, LUPUS.  WOW, I LEARNED AS MUCH AS I COULD FROM THEM AND THEY DID NOT MIND. IT IS JUST NOT SO SIMPLE TO RELY THE EXPERIENCE ESPECIALLY WHEN YOU ARE SICK YOURSELF. I DID THE BEST I COULD AND I NOW THINK MY BEST WAS NOT GOOD ENOUGH. I PRAYED!!THAT EVENTUALLY , SOMEONE WOULD PICK UP WHAT I STARTED AND RUN WITH IT. NO WAY, NO LUCK!!!!!!!! I DID AROUSE SOME PUBLIC AWARENESS BUT, NOT ENOUGH. MANY PEOPLE CONTACTED THE NEWSPAPER BUT, THEY COULD NOT TAKE NAMES NOR WOULD THEY GIVE MY PHONE NUMBER. THAN I SAID TO MYSELF, WHAT GOOD WAS THE ATTEMPT OF PUBLIC AWARENESS. NOT MANY PEOPLE, SAW THE COMMERCIAL NOR READ THE NEWSPAPER. THAT IS WHEN I REALIZED EVERYONE WAS TOO SICK!! SO, HERE I AM TRYING AGAIN TO REACH THE PUBLIC. CARENITY, HAS BEEN GREAT JUST TO PRINT  THIS SMALL  ARTICLE FOR ME.... I PRAY IT REACHES THOSE WHO WANT TO HELP  THOSE WITH LUPUS AND LUPUS PATIENTS ALL OVER THE USA. HERE IT IS PLEASE FEEL FREE TO WRITE ME:

MICKEY AKA M. MCNEILL   *** **** ***** //R.C., CA 91737

THANKS IN ADVANCE FOR WRITING CARENITY AND GIVE THEM THUMBS UP FOR TRYING TO HELP THOSE WITH LUPUS OR KNOW SOMEONE WITH LUPUS!!!

MQM