Confusion and lightheadedness

It seems brain fog is something that often comes with autoimmune disorders. I always try to make sure I get enough rest and write stuff down, but I also have come to the recollection that I will have days where the fog is worse.

I have heard that if nutrients are out of balance, this can make things worse. Have you looked into your nutrients?

Hello to day is a bad day for me, pain is radiating at about a 7 scale. 

Hello @Jackie2018‍, I am sorry you are having a bad day today and that the pain is radiating so high; however, such a response is unrelated to the topic at hand of light headedness and brain fog. I recommend you create your own discussion in this group of "Living with Lupus" for appropriate responses.

Thank you.

I hope yall are from the orlando area. Anyone recommend a good rheumatologist.  I'm struggling to find one that cares. Thank you 

@Mgilger19‍, I have messaged you directly. Someone replied to that question in your other post, in case you did not see it.

@Lee__R‍ 

I did not see their response. Do you remember what it said. I could really use the help. No one has responded to my own discussion I posted. Thank you 

You are correct they didn't I have 2 people I know who went on something called Benestyl I went to Rhemetology and( he is just ok) and I forgot to mention prior to my stroke I would get this way and I would think diabetic

You can write me anytime the caretaker put that in but really I cant get anyone decent at 15 hour 

It also hard for me to focus and concentrate. I used to be multitasking, but that is impossible with this fatigue. What I do is to do one thing at a time and take deep breaths and rest in between and little by little the ideas pop in my mind. What I recently was recommend was to consume chlorophyll daily to oxigen the heart and brain. I’ll try it and let you know how it works!

@Marglen more than the actual incredible pain, more than the difficult tasks that were once easy, more than my family not understanding, being confused is almost the worst. You foget something and people say oh that happens to everyone but you know different... you know when you are in your own house and you get confused washing clothes when you already have or other little things like why the remote won't work or my best (used to be when i was working) getting up going to work and its Sunday but you dont remember until you get to work and wonder why no one is there  i would set my gps to my work address every morning and home every afternoon  oh by the... there is a list in my car that reminds me to do that. Or having a conversation with others and they wonder why you are not keeping up... it either doesn't process or you forgot from the day before where the discussion ended or even worst you forgit all together that you were there fire the discussion... i was diagnosed by my ear nose and throat doctor after 2 years of test... my then husband left us because he stated my sickness was all consuming... i guess he had a crystal ball or just being in that state at that time was more than he could handle. Who knew 8 years later that days would go by and i couldn't or can't remember what happened on those days.  My memory loss destroys my confidence and SCARES ME TO DEATH.  The pain, the confusion,  the rooms spending, the dry eyes and mouth, the inability to finds words to make a comprehensive sentence, nausea,  the depression,  the constant anxiety and panic attacks just to go to the store or while you are in the store; the panic attacks so bad all you can do id leave your cart there and leave... there my be some rational someone could give me for all of this but what i can't desl with is the memory losss. I ask there same questions 2 or 3 times in a row so im been told. "I know I would never have said that" but the truth is I might have.... my mother is more right than she knows i do have a mental problem but itas not what she thinks it is... im scared of hat comes next with these diseases or what will be the next thing i forget...

After 30 years of working, i was told to find a way to handle things and for 7 years i did but when my memory became an issue, there was no way to cope with it all

 Dear Glenda, I wish I can do something to help and I bet that a lot of people feel the same powerlessness before this situation. 

I can tell that you’re a very strong woman! You have been through a lot by yourself!

I think is so cruel to abandon someone for her health condition. For some people the saying “For better or for worse” means nothing to them. I used to be in a relationship where the guy was so upset because I had no energy to cook that he used to say “I’ll go to another house because there’s no woman here to cook.” I’m still struggling and exhausted, but thank God my new partner is nothing like that. He had offered me unconditional support and love since the beginning and I believe that all human beings deserve the same.

 I wish you the best and I send you a warm hug.