COVID-19 and Lupus: How is the pandemic impacting your lupus?

@Courtney_J My state has a stay-at-home order so I'm staying at home and working from home! I get my meds through the mail so I'm set on that front. I spend the week working at home but I try to get out into my backyard and the sun at least an hour a day and more on the weekends to get that vitamin D. I've got a full Netflix queue and lots of snacks so I should be ok. I'm hoping this won't go on too long because I know at some point my depression will start creeping in. Just trying to look at the bright side of things.

I've heard that there's going to be a run on plaquenil because of the pandemic. Has anyone heard anything about this? Has anyone had a hard time getting it at the pharmacy? I going to need a refill soon so I'm a bit worried...

@mvn481 its true.  I'm having problems getting it too 😤

@Courtney_J  I’m doing okay. I okay with the social distance. I work at the hospital part time as LBSW/CM and I working on master in social work. I have been being very careful and mindful,  I am schedule to see a new Rhumetology on next week since my other move to California. Since the pandemic I have to push school back. I was a little upset but I have accept it. I live in South Carolina and we just got stay in home order. It been a little stressful but I have been doing mindfulness in the morning and my faith is strong, That this to shall pass.

I to have Lupus I'm doing okay with stay in order I'm from Kentucky, it's hard on the depression but I'm trying to stay busy I to am on the Plaqueunal so far I'm good though my Dr. Has added Benlysta 200mg. Once a week to help with the tiredness I've only been on it for 3 weeks now so not seeing much change yet hope this will end soon so I can get out.......

My status is being told to stay home and quarantine away from family. I was not tested but told I still may have it, just a milder case. I only have now headaches and stiffness in my neck. I'm on day 5 of this pain. I feel as if I'm under water sometimes in my head. Thankful I've had mild symptoms.

I have lupus and I’m experiencing a lot of anxiety. I’m always scared and worried and I’m trying to stay positive. My heart is constantly racing. I don’t know what to do 

@mvn481 I had a hard time getting my refill it was on back order for 1 week it came early tho I wasn’t supposed to get it for 30 days they are using it to treat covid 19 patients

@mvn481 I had a hard time getting my refill it was on back order for 1 week it came early tho I wasn’t supposed to get it for 30 days they are using it to treat covid 19 patients

Hello everyone,

How are you all doing today?

If you haven't already seen it, we just published the other day an article on hydroxychloroquine and the impact of its use for treating COVID-19 is having on chronic patients. In it we summarize the results of our survey on Plaquenil and COVID-19from Carenity members across the globe. I think you all may find it interestin.

Plaquenil as a treatment for COVID-19: What are the consequences for chronic patients?

Don't hesitate to share your thoughts or your own experiences in the comments below the article!

Take care,

Courtney