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Dealing with Migraines when Diagnosed with Lupus
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Go to the last commentUnregistered member
migraine is one of the common sign of lupus. If you doubt your migraine is caused by lupus, you can click the link to know more https://www.lupusuk.org.uk/headaches-and-migraines/
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That was an incredibly informative article! Sadly though, none of it explains why mine has been constant for several years now :c
Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,338 comments posted | 37 in the Living with lupus group
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Hi @Bean72,
I wanted to let you know that Carenity has added a Migraine to the conditions - creating a new group specifically for migraines and a group of forums. The group has only been created a for a few days, so it is a growing community still, but I would encourage you to add it to your conditions so you can chat and share experiences and advice with others who are suffering specifically with migraines.
Add Migraine to your profile: https://member.carenity.us/conditions and click Add Condition. You will now have access to the Migraine group by just clicking "My Groups"
Access the group https://member.carenity.us/forum/my-groups?input=migraine
jrosa711
jrosa711
Last activity on 05/14/2020 at 6:47 PM
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4 comments posted | 3 in the Living with lupus group
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Hello,
I have recently been diagnosed with Lupus in March and everyday for the last three weeks including my birthday I have spent in pain due to Migraines. I even went to the ER for the pain, and to have a CT scan. I have my PCP that says its due to my Lupus and my Rheumatologist who says it's not. It was hard enough for me to get a diagnosis for Lupus as every specialist I saw would tell me the thg didn't understand/know what was causing the problem for my Lupus. I am saddened by the medical community who continues to point fingers elsewhere leaving us feeling overwhelmed and in pain. I don't wish this on anyone.
johnboy7981
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johnboy7981
Last activity on 11/11/2024 at 12:34 PM
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10 comments posted | 6 in the Living with lupus group
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I've had bad headaches and migraines since my early teenage years. Ones to where I go lay in a dark room, no light, comfy blanket and a box fan to block out any possible noise. Over the last few years it seems that headaches can come more often and migraines have resurfaced, before I was diagnosed with lupus. I've found it helpful to grab a frozen gel-pak from the freezer and use that.. in conjunction with tylenol and rest.
mvn481
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mvn481
Last activity on 09/02/2023 at 12:01 AM
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70 comments posted | 25 in the Living with lupus group
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I have been getting migraines as well... any type of light seems to make it worse and I have not really been able to identify what is triggering them to become more often and intense.
Has anyone figures out what is triggering their migraines?
@johnboy7981 @jrosa711 @eleanee @Bean72 are you taking anything for migraines? have you found anything to help?
johnboy7981
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johnboy7981
Last activity on 11/11/2024 at 12:34 PM
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10 comments posted | 6 in the Living with lupus group
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@mvn481 what I've found out on lupus.org is that individuals with lupus are twice as likely to have headaches and migraines, which are called 'lupus headaches'. It seems I have more when I'm in a lupus flare, where everything hurts; or if I've been in the sun or heat too long.
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@mvn481 I've taken a few different prescribed medications for my migraines, but sadly nothing helps at all
lupus38
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lupus38
Last activity on 01/10/2023 at 10:56 AM
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@jrosa711 thanks for the tip, i am going to try the frozen gel pack. i feel like i have tried everything but don't exactly remember if i have tried that, though it's possible. at this point willing to try it all
jrosa711
jrosa711
Last activity on 05/14/2020 at 6:47 PM
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I'm still not 100% that my lupus causes my severe migraines as I was just recently diagnosed; but for 5 years now I've had one constant, excruciating migraine. Every day, every second, my head is in pain. I've tried everything I can think of and nothing helps.... does anyone else have this issue?