Back

Patients Migraine

Your experience with migraine - Let's share!

17 views
2 times supported
3 comments

Courtney_J

Community manager

01/13/2021 at 12:00 AM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,340 comments posted | 5 in the Migraine Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

How are you today? emoticon cute

I thought I would pop into our group to share our latest article on migraines! Did you know that approximately 40% of the population has experienced a migraine at least once in their lives? In our article we break down the definition of migraine, its causes, symptoms, and prevention! Feel free to give it a read here: Migraine: What is it and how to fight it?

What has your experience with migraine been like? When did you start experiencing them? When were you diagnosed? What treatments have you tried? Do you have any advice to share?
@mhorwi93‍ @eeliot‍ @Bertah‍ @Nina10‍ @Brens5tzus‍ @emmystlou‍ @Suzie13‍ @Smitty‍ @mandylozon‍ @Nateynoo‍ @lyllith‍ @Mtilds‍ @Mavicdrone‍ @Jjediknight‍ @Jayse76‍ @tammiorw69‍ @Kerrym‍ @BeautifulDisaster‍ @Catherine‍ @Npandey‍

Feel free to introduce yourself and share your story here! We're all here to help and support one another!

Take care,
Courtney

All comments

myheadhurts

01/14/2021 at 6:19 PM

Good advisor

myheadhurts

Last activity on 03/23/2023 at 12:25 PM

Joined in 2019

15 comments posted | 9 in the Migraine Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Courtney_J Hi Courtney, it's nice seeing this group revived! I've never officially been "diagnosed" with migraines because I can't seem to get any doctor to take it seriously. When I got out of school I started working as a data analyst, so I spend my day in front of a computer screen. After a few months I started getting the worst migraines going home every night and then eventually they started creeping into my life outside of work. I mostly self treat them with Excedrin and anti-nausea meds. I was also just gifted a pair of blue light glasses for Christmas and they're still new but seem already to have helped!

Your experience with migraine - Let's share! https://www.carenity.us/forum/migraine/living-with-migraines/your-experience-with-migraine-lets-share-2949 2021-01-14 18:19:26

toomuchpain

Edited on 01/14/2021 at 6:38 PM

Good advisor

toomuchpain

Last activity on 10/18/2022 at 6:00 PM

Joined in 2018

35 comments posted | 3 in the Migraine Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Courtney_J My "main" chronic illness is fibromyalgia, and it brings me the "gifts" of chronic pain and migraines. I have a lot of tightness in my neck and back and the squeezing feeling kind of goes up my neck to my head (if that makes any sense) and triggers migraines. I never really had them before my diagnosis. I'm on a few different medicines for my fibro, including a painkiller that is supposed to target the migraines along with my tender points. It's not always effective because the migraines still manage to creep through some days.

I don't know that I have any helpful advice for anyone, but I guess I'd say to be like a dog with a bone in getting help for your migraines. Don't let the doctors wave you off. Keep insisting and get them to listen. Your pain is real and important!

Your experience with migraine - Let's share! https://www.carenity.us/forum/migraine/living-with-migraines/your-experience-with-migraine-lets-share-2949 2021-01-14 18:36:36

LinnieHillger

07/30/2021 at 8:34 PM

LinnieHillger

Last activity on 08/02/2021 at 6:31 PM

Joined in 2021

1 comment posted | 1 in the Migraine Forum

Rewards

Explorer
Friend

View profileView Add a friendAdd Write

Hello,

I suffer from what i call BLACKOUT migraines. At times the light and sound makes my head feel like it will explode and i'm nauseated, but most of the time i cant see at all when i have a migraine. I've learned not to eat chocolate 4 hours before i go to bed or i'll wake up with a pounding sick to my stomach migraine.

Tylonal or any over the counter meds don't touch it. I have to thc the pain away and usually don't take long and i can see again. If i don't use thc my head ache lasts for DAYS instead of just a few hours. Any pain meds the doctor put me on was way to strong for my system. Tylonal even puts me to sleep.

Thank you for listening to my short story.

Linnie

See the signature

Linnie :)

Your experience with migraine - Let's share! https://www.carenity.us/forum/migraine/living-with-migraines/your-experience-with-migraine-lets-share-2949 2021-07-30 20:34:10

Members are also commenting on...

Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

See the best comment

MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

See the best comment

dan.varady

Ambassador

10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

See the best comment

Armor2

05/13/2023 at 5:38 PM

See the best comment

MountainMan

Edited on 03/25/2021 at 8:23 PM

See the best comment

dan.varady

Ambassador

10/17/2023 at 2:30 PM

See the best comment

Articles to discover...

07/03/2024 | Testimonial

Migraine: "I live a full life and know when I have to tweak things." #ShadesForMigraine

06/25/2024 | Testimonial

Migraine: “I try to stay encouraged and smile no matter what.” #ShadesForMigraine

06/19/2024 | Testimonial

Migraine: “With the lack of education around the disease, opportunities for early diagnosis were missed.” #ShadesForMigraine

06/15/2024 | Advice

Migraine: What are the lesser-known symptoms and how can you help? #ShadesForMigraine

10/19/2018 | Advice

Alternative Medicine And Therapies For Pain

02/08/2019 | Testimonial

No more processed foods: obesity, diabetes, Lyme disease and depression

10/17/2018 | Advice

Applications to Help in the Fight Against Chronic Pain

10/18/2018 | Advice

Fibromyalgia And Chronic Pain

Your experience with migraine - Let's share!

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...