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What were the first symptoms that you experienced?

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Lee__R

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05/29/2019 at 1:46 AM

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Lee__R

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Hello everyone,

Multiple Sclerosis brings a whole host of symptoms that many patients endure before being diagnosed. Some of the most common symptoms are double vision, bladder issues, pain and spasms...unfortunately, the list goes on.

What Multiple Sclerosis symptoms did you first experience? How did you manage the symptoms?

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Bellabay12

05/28/2020 at 4:25 PM

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Also had blurred vision but didn't think much about it. After diagonosis tests showed had optic neuritis. What my symptoms were that I went to doctor for, I woke up one morning & my left arm to my hand was numb. This was 16 years ago. Fortunately I have a very good primary doctor. He looked back over my records of different things I had come in for over the years, tiredness, muscle spasms in my back , scheduled me immediately for an MRI. 3 days later office called me to come in. That's when I was told I had MS & sent me to a neutologist. The Neurologist said had a number of lesions & had had MS for a long time. Put me on Rebiff & my 1st few years had pretty rough time. From Rebiff to Tysabri to CoPaxone and now on Aubagio. Thankful I am doing well. Do have the fatigue, times my legs feel very heavy & now heat/sun exhausts me.

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Bellabay

What were the first symptoms that you experienced? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-were-the-first-symptoms-that-you-experienced-1059 2020-05-28 16:25:36

siemprelucha

05/28/2020 at 5:06 PM

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siemprelucha

Last activity on 11/30/2023 at 1:55 AM

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For me it all started waking up almost completely numb, especially in my hands and feet. And it would be really hard to walk or stand up.

NewLeaf

05/31/2020 at 9:04 PM

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NewLeaf

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Buster, you aren't stupid. 8 doctors and nurse practitioners never caught my MS until this year in February. I'm 69 and have had symptoms for about 20 years. MS is a crazy disease I'm finding out.

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TrishPaul

06/16/2020 at 12:42 AM

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TrishPaul

06/16/2020 at 12:45 AM

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I lost the feelings in my hands while we were doing an outdoor catering . I thought it was because we were working a lot of hours in the heat so I didn't think too much about it at first. Over the next few days, I still didn't have the total use of my hands so my husband made me go to the doctors.

NewLeaf

06/19/2020 at 12:16 AM

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Bellabay12...I finally broke down and spent the money on a cooling vest. I suffered from heat to the point that I looked like someone poured water on me, even when I went to church. The cooling vest gives me about 4 hours of cooling in 80-90 degree heat.

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BusterBluth

06/19/2020 at 6:42 PM

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@NewLeaf Thanks, I've been really overwhelmed with all of it. I got my diagnosis two weeks ago. What is the cooling vest for? Does MS make you feverish? Sorry I'm still learning about this disease so I may ask "stupid" questions.

NewLeaf

06/19/2020 at 8:24 PM

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The cooling vest is for when I am so hot I can't stand myself. MS can make a person overheated in hot weather and I've read susceptible to cold weather also. The MS website has been very helpful also. Try to read all you can and journal symptoms, it really helps. Does that mean you will always accept and stay positive? Nope but it helps with doctor appointments. The other day I had a meltdown at the doctor's appointment. Most of the time I put one foot in front of the other and really try to stay as positive as I can. For me it's a true mental game that sometimes i win and sometimes i wish i could quit the game. HUG and good luck.

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bratt22

06/28/2020 at 11:12 PM

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I had 4 numbness spells. left leg,, numb for 2 weeks, went away, Another month, stomach to middle of back-numb--2 weeks, went away,,then month later below my nose numb to middle of head, left side,, month later-went blind in right eye.--lasted 2 weeks,, brought sight back with steroids. Found out I had MS when they did spinal tap. I have had MS for 40 years, Ist 35 years, you could not tell I had MS. Now last 5 years, the MS has been acting up--some. I now have to use a walker allll the time. I really feel very lucky, cause i realise I could be much worse. I was in hospitol two weeks ago, when they took an MRI. My DR told me I had no new white lesions in my brain. Only lots of old ones. The good Lord and Drs Have kept in good shape for over 40 Years . Everyone stay safe, thanks for listening, Louise Frontz

PS I was born with Cataracts, My 2 sons also. My Sons---Sons--but not their --Daughters.

BWroke

06/30/2020 at 5:16 AM

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I was diagnosed with MS at 68. Mine came on all of the sudden. I was paralyzed from the neck down in less then 30 min. I looked back on my life which was a very physically active life and did not remember anything that would think I had MS. Then I remembered odd thing that happened to me. I worked a lot of hrs. so I thought it to be stress related. My right leg had a numb spot that over the years got larger and spread out. I had Shingles on my face one time and I got where I could not see colors very well. I told the Dr. that was treating me for the Shingles and he just said that's odd. Now looking back I know that these were signs of MS. The Dr. didn't even see it at the time.

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