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I am feeling alone and don't have anyone to talk to
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Beacon8712
Beacon8712
Last activity on 08/09/2023 at 9:03 PM
Joined in 2021
@lori49 Is there a support group where you can go talk to and listen to other stories? Counseling?. Your doctor should be able to refer you to a therapist who deals with cancer patients or should be able to give you information on support groups. If you’d like you can always message me back good luck to you
thall1222
thall1222
Last activity on 10/05/2022 at 9:35 PM
Joined in 2021
Hi I was diagnosed with stage 4 pancreatic cancer in October of 2019 I was shocked and knew I was going to die but I had a relationship with Jesus so I was not sad or afraid. I found a life giving church so that I could have people in my life to connect with and who would love me and pray for me. GOD has been with me through everything my cancer has been shring for the last 15 month and I feel great I have great joy and hope in my life no matter what happens I will be blessed. I pray you will find joy in your difficult journey
bretruss
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bretruss
Last activity on 02/11/2023 at 2:45 AM
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5 comments posted | 3 in the Cancer Forum
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@Ariel1124 I'm so sorry you are dealing with this. I to am waiting on a diagnosis. I have to do another scan in 5 months before they will biopsy it. I also have had many family members who had cancer. It's not fun. Just know many of us are hugging you it's important u stay as strong as u can. I'm always hear to talk. It help to talk about it. Husband maybe in denial. I know my dad was with my mom
NathaliePham
NathaliePham
Last activity on 12/13/2022 at 5:27 PM
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Hi! I am new to this group. I got my diagnose of anal cancer stage 4 in January 2022. I am 60 years old. I have been through 2 cycles of chemotherapy, there are 4 more cycles coming up. Praying my body can take it. It was hard to get the news, some days are hard but I try to focus on finding ways to feel better and when it gets hard I seek God’s strength. I found carenty stories helpful.
MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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I am sorry to hear this. It is very difficult. I was diagnosed with Multiple Myeloma 7 years ago. I have no way of knowing what the outcome will be. My side effect is kidney failure . This makes it difficult in that I need to do dialysis every day in the night time for 8-9 hours. The things that have helped me is cultivating communication with my friends. Although only a couple understand-they are a bulwark. I don't broadcast my condition in general, but I have let my family members know, and they all know that I am consistently positive.I took up piano as a creative venture, and although I am just a beginner it helps me to have this creative outlet. I am an artist, so painting does help also. My immediate family, and extended family may not fully understand, but they offer some support including prayers. All together this helps make my condition tolerable, although a few times I had health crises, and it is always hard in those instances. I tend to cry more when I have one (like pneumonia or peritonitis).
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dannyman
dannyman
Last activity on 07/07/2024 at 11:44 PM
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@MarcBehAnalyst i had part of my colon removed and some intestines.now have to wear a colospy bag. but im alive and try to enjoy life the best i can. im trying to meet somegirl for compaionship and when they see colospy bag they run.i hate going threw this alone
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danny couch
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dannyman
dannyman
Last activity on 07/07/2024 at 11:44 PM
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never give up, no one understands what cancer can do to you,unless they had it themselfs, lots of prayers and keep strong and fight it. it worked for me,now i know there is a god out there,and thank you jesus
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danny couch
dannyman
dannyman
Last activity on 07/07/2024 at 11:44 PM
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im feeling the same way i did survive cancer but it left alot bad scars the radiation caused nerve damage in both legs,i can still walk but not that far,they removed part of my intestines so now i have to wear a colospy bag i feel like a freak of nature,the chemo caused memory loss and a little sign of deminshia.im always feeling depressed,any advice for me
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danny couch
Tstokes
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Tstokes
Last activity on 10/15/2024 at 4:53 PM
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25 comments posted | 11 in the Cancer Forum
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Ariel, First and foremost, you have every reason to feel afraid, scared, or any other emotions you're feeling. I was first diagnosed with Renal Cell Cancer in 2000. I was 40 yrs old, had a wife, 4 children, had just been promoted to a Vice President in my fortune 500 company and thought I was going to lose it all in a blink of an eye. I had a full left nephrectomy of my left kidney. I thought I dodged a huge bullet and was Cancer free. Then I received my next gut punch (2003), I had a reoccurence of the Renal Cell Cancer in my sacral bone. I under went 36 rounds of radiation and 3 months of immunotherapy (interluken 2). Then gut punch #3, I had a second re-occurrence in my sacral bone(2005). I under went another round of radiation called Norvalis. I only had 5 targeted treatments to the sacral bone. The radiation dose was 5X stronger than the previous radiation. I also qualified for a chemo trial with a drug called sorafanib (before this there was no chemo drug for Renal Cell Cancer). It lasted 9 months. I was in total remission. However all the radiation had debilitating results on my spine. . Between 2007 and 2010 I had 20 different surgeries to try and repair my disintegrating spine. During one of the surgeries I got a terrible staph/MRSA infection. This led to 10 more surgeries to clean out all the infection and put in 2 16 inch titanium rods in my back. This led to partial paralysis in my left leg (they severed nerves while getting the infection). I almost died and was life flighted from Omaha to Chicago. I spent 6 months in the hospital. When I finally recovered and returned home I was advised to stop working and focus on getting my health back. I have been on Long Term Disability since then. In 2017 a small nodule in my left lung was found to be malignant. I underwent laproscopic surgery and it was successfully removed. In 2019 during a colonoscopy, they found multiple precancerous nodules. Based on my history, they recommended I have a proctolectomy. This left me with an ileostomy bag for my waste. In 2021 a an ulceration on my heal became infected and I had a below knee amputation preformed. If all of this isn't enough during scans this year they found 4 new tumors. One on the adrenal gland above my right kidney and 3 in the lymph nodes in my chest. I began immunotherapy treatment with a new wonder drug called Keytruda. It has had great results with people with Renal Cell Cancer. There was also to be little to any side effects. Great, I have my first infusion and for 2 weeks I had no side effects and felt great. Then on the weekend before my second infusion my wife couldn't wake be up on Saturday morning. She immediately called an ambulance. I was in a coma for 5 days. They did multiple tests until they found my pancreas was no longer producing insulin. So they began pumping me with insulin and got me out of the coma. I'm now type 1 Diabetic and have an insulin pump. I have also started a new round of treatments with a drug called Avastin. I have been doing treatments every 2 weeks since April. I had scans last month and all but one of the tumors has reduced in size and no additional tumors have been found. I'll continue this treatment has long as I see success and have no adverse side effects. So far, the worst side effects have been extreme fatigue for several days after treatment. I apologize for the lengthy reply. I just want you to take away several things. You a fully justified with all your feelings. They are all very real! I also want you to know there's plenty of HOPE. I pray your journey is not as difficult as mine has been. But because of all the medical advancements, I've been able to see all my children graduate from HS and College. I've walked 2 beautiful daughters down the isle and watch one son marry the girl of his dreams. I've been blessed with 5 fabulous grandchildren whole are the love of my life. I'm able to lead a full and productive life with a wonderful family and Fantastic friends. My wife and I have been through so much and it's brought us closer than we've ever been and we just had our 40th Anniversary. While I can't lead the life I'd like to. I appreciate everything, and everyone so much more. So, know Cancer isn't a death threat. Renal Cell Cancer is one of the slowest growing Cancers. When it's detected early it's one of the most treatable Cancers and you can live a long Cancer free life. That's my hope for you. I hope this helps ease your concerns. I know my journey has been a tough one. But I'm still here after 23 years and I hope and believe I still have more years ahead of me. If you have any further questions please don't hesitate to contact me. As you can tell by my story, I have alot of experience with Renal Cell Cancer!
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Thomas F Stokes
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MarcBehAnalyst
MarcBehAnalyst
Last activity on 11/11/2024 at 9:51 PM
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@Tstokes I was diagnosed withMultiple Myeloma seven years ago. I have had some setbacks including a recent case of Covid that was serious. I can't compare with the stuff you have had to overcome but I have had a few brushes with death. I have great medical personnel and the prayers of many. I am humbled by the entire situation and hope for a long and continued life for others, and for myself.
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Karenrpryor
Karenrpryor
Last activity on 10/19/2023 at 2:49 PM
Joined in 2023
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Prayers/good vibes for you, hon. I really don't think men know how to handle those feelings sometimes. My boyfriend is kinda the same way, and it hurts even though I know he's really scared. I was diagnosed with stage 1 Adenocarcinoma of the lung. Had the right upper lobe removed 2 weeks ago, so they tell me that I'm in a remission stage unless it shows up somewhere else. It's scary, I know.
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Jen718
Jen718
Last activity on 10/15/2024 at 3:28 AM
Joined in 2024
@Karenrpryor yeah MEN HAVE ZERO CLUE how to handle anything your better off finding a support group
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Sheltonangie
Sheltonangie
Last activity on 11/19/2023 at 7:32 PM
Joined in 2023
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Ariel1124
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Ariel1124
Last activity on 11/14/2019 at 9:36 PM
Joined in 2019
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I'm feeling alone. I dont have anyone to talk to my kids are too little and my grandparents have enough to worry about and my husband just simply doesn't want to hear it I just got the news Wednesday and he's expecting me to be all super positive and roar but I'm not right now I'm not okay I'm sad afraid confused I just want to be held and cry it all out