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How do tremors impact your everyday life?
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,338 comments posted | 20 in the Living with dystonia group
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Hello members. Hope you do not mind me tagging you in this discussion. Feel free to comment, share, and discuss with each other.
@Raine061 @Slj42 @Dearluly @Lin123 @Foxyfoxm @mvmentme @Gloria6913 @Dyston!a @Armor2 @Plantsorpills @maritootles @rooks71 @Janine @sneakysideeye @tzap467 @Rseeya @Chi910 @ITGuy1 @Cherie @Syrina @Lanne803 @Amsluvsfun @BP @Jdsbruce @BIGtGotC @Lsherrer @dennisd51 @barneydl @Emndarmic @2skatermom @help11 @donhop @Nicholson13 @Donnsi @Judy747
Armor2
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Armor2
Last activity on 07/14/2024 at 8:22 PM
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27 comments posted | 12 in the Living with dystonia group
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My head tremors due to cervical dystonia causes me to avoid haircut because I feel everyone is watching me. My best way of dealing with this is to go right after a massage.
Foxyfoxm
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Foxyfoxm
Last activity on 05/23/2019 at 10:37 PM
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15 comments posted | 15 in the Living with dystonia group
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@Armor2 Luckily my hairdresser has been cutting my hair since I was 12 and she comes to my house for cuts/color so I just hold my head as straight as I can and it’s usually still cut a bit crooked but it’s ok bcuz it goes with my neck lol... and yes humor gets me thru a lot..
Shame on them.. And let them stare.. we all have something I feel whether it shows on the outside or is on the inside..
Jdsbruce
Jdsbruce
Last activity on 11/12/2024 at 4:36 AM
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5 comments posted | 4 in the Living with dystonia group
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I try to ignore them which is extremely difficult because I'm a cashier at Walmart. Beyond that, they exhaust me when coupled with MS & terrible allergies. When at worst, they embarass me and cause plenty of pain.
Armor2
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Armor2
Last activity on 07/14/2024 at 8:22 PM
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Jdsbruce
Jdsbruce
Last activity on 11/12/2024 at 4:36 AM
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I'm truly sorry to hear that, Armor2. I try to push away thoughts of not being able to work. If that happens, I'll lose custody of my 8 year old. Her father (ex-husband) , while not physically abusive, is very detached from her emotionally.
Armor2
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Armor2
Last activity on 07/14/2024 at 8:22 PM
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27 comments posted | 12 in the Living with dystonia group
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I felt that was happening with your situation, and my heart goes out to you. It is tough to know you have to work with no other options and to have CD on top of that.
Dylsmom
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Last activity on 08/15/2020 at 1:07 AM
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achard
achard
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I have had better results with Xeomin than Botox. Botox helped at the beginning but not so much on further injections.
Courtney_J
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Courtney_J
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Hello everyone,
How are you? Have you seen this discussion?
How does your dystonia impact your daily life? Have you had to change your daily routine or the way you do certain tasks ? What have you done to adapt?
@russode @Gigicoughlin @CrystalGiles @Aprilmariejack @Cathymls @Cat0919 @Mom23ms @Awatchman @Paula.Schmidt @Bagohlke @trasaba1126 @Charlotte @abruce80 @Kari0201 @nashsher59 @mtlisa @Elviscd1
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 20 in the Living with dystonia group
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Hello,
Tremors are a common symptoms experienced by those with focal dystonia, which can impact many daily tasks.
What part of your body mostly suffers from tremors? Which tasks do you find the most difficult as a result of the tremors? Do you have any modifications or tips to help perform those tasks despite the tremors?
Please share and discuss