- Home
- Share
- Forum
- Multiple sclerosis Forum
- Living with Multiple Sclerosis
- What is the most frustrating or difficult aspect of living with MS?
Patients Multiple sclerosis
What is the most frustrating or difficult aspect of living with MS?
- 572 views
- 9 times supported
- 35 comments
All comments
Go to the last commentUnregistered member
I try not to think about the things I can no longer do and make modifications so I can keep doing some of the things I enjoy. An example is Photography. I can no longer climb hills or walk on uneven ground so I had to adapt how I shoot. I also had to give up photographing HS sports. BUT I consider myself fortunate that I'm still on the right side of the grass. I will not let MS drag down my mood. When it tries to, it's very brief.
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
So how does a person deal with haveing Ms it is so hard not to think about bad stuff and just makes you sad
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
It Like my life is over I ask myself is this what I want to live with saddness and pain I don't know am very confused right now on how to deal with this and I don't want to think k just bein crying and unsure what to think
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
It Like my life is over I ask myself is this what I want to live with saddness and pain I don't know am very confused right now on how to deal with this and I don't want to think k just bein crying and unsure what to think
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
@ how do you not think about it
copa20
Good advisor
copa20
Last activity on 09/02/2020 at 3:21 PM
Joined in 2018
21 comments posted | 19 in the Multiple sclerosis Forum
Rewards
-
Good Advisor
-
Contributor
-
Explorer
@Bigkenny Hey, I've been where you are. accepting all of this is hard and crazy overwhelming. Your life isn't over, you just may need to adapt the way you do things. Do you have any friends or family you can lean on or talk to about it? Let them know how you're feeling and ask them to help you distract yourself or clear your head. When I'm having a bad day I talk to my kids or I try to throw myself into something I love to do. I'll go for a (slow) walk just to get some air and get out of my negative space or I'll watch a show or movie with my kids or grandkids. What often starts off as a temporary distraction actually does me a lot of good.
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
I still need to figure ways out all I do right now is cry alot I saw my mom go through it when we was young it sucked my world is so much going to change I don't if I can do this to be truthful to u don't know if I want to
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
what do I do to not think about thisfu ked up shit
Bigkenny
Bigkenny
Last activity on 09/02/2020 at 9:02 AM
Joined in 2020
11 comments posted | 11 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Explorer
I just want it all to go away am telling u the doctor have to be wrong that is all thier is to it they have to
looking4
Good advisor
looking4
Last activity on 04/15/2023 at 10:43 PM
Joined in 2018
19 comments posted | 19 in the Multiple sclerosis Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Courtney_J For me I think it's the loss of independence caused by my mobility issues and other symptoms. I used to be pretty active and involved in lots of things, but now I can't do as much. A lot of things I need help with and it's frustrating.
Give your opinion
Members are also commenting on...
Articles to discover...
10/04/2024 | Advice
Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!
05/30/2024 | News
What are the benefits of herbal medicine for multiple sclerosis?
04/24/2024 | Testimonial
Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”
02/01/2019 | Advice
11/26/2018 | Testimonial
Multiple Sclerosis And The Success And Side-Effects With Various Treatments
08/17/2018 | Testimonial
No One Knows What Being Diagnosed with Multiple Sclerosis Is Like, So Maintain A Can-Do Attitude
05/10/2019 | Testimonial
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
You have been subscribed
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 96 in the Multiple sclerosis Forum
6 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hi everyone,
How are you doing?
Adjusting to life after being diagnosed with multiple sclerosis can be challenging. It requires becoming more aware of the limitations that your body will experience and the lifestyle changes that these changes will force upon you. These adjustments my impact every aspect of everyday life; from basic mobility, to relationship dynamics with family and friends. The nuanced list goes on, but let's hear from you!
What is the most difficult or frustrating aspect of living with MS? How do you cope with this or these challenges? Is there anything you miss about your life pre-MS? Do you have any advice to share?
@Brinahbaby92 @dimples854 @makaylah76904 @SherryT @sma5153 @NancyT @Rayne86 @Jayn1122 @cindy.wms1962 @msjoye @Star0789 @Kellyteal @Emma2190 @PennyEllyson @Shithead @Russso @Eistot @ak2663 @jacquie @Katrina2864
Feel free to share your thoughts and experience here!
Take care,
Courtney