Patients Respiratory system

Welcome to the respiratory conditions group! What's your diagnosis?

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Courtney_J

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02/11/2021 at 6:22 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hello everyone,

I thought I'd create this discussion so we can get to know one another better! emoticon cute

In this group you can share your thoughts on respiratory conditions, how you cope with your condition in the day-to-day, how it affects you mentally, anything! If you have any questions you can also share them here!

So, let's introduce ourselves! What is your respiratory diagnosis? How long have you had it? How are you doing today?
@MayorG45‍ @JessPotato‍ @paulah‍ @Mclaugj‍ @Bearguy‍ @Ledae4‍ @esousek97‍ @Virgo76‍ @tonimarshall29‍ @BrerRabbit‍ @Mamawzoo‍ @Flamingo3‍ @snowdove102‍ @Sandywood‍ @Berry12‍ @Jessica45qt‍ @Mimi62‍ @waco48‍ @Sxynsmrt‍ @Granni‍

Let's get the conversation started! emoticon bashful

Take care,
Courtney

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Sugar67

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01/13/2022 at 6:46 PM

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Sugar67

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Last activity on 11/24/2024 at 4:02 PM

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56 comments posted | 4 in the Respiratory system Forum

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My reservation is not good, I have bronchitis, asthma and Emphyzema and I'm on oxygen.

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Kimberly Ryan

Welcome to the respiratory conditions group! What's your diagnosis? https://www.carenity.us/forum/respiratory-system/living-with-respiratory-system-disease/welcome-to-the-respiratory-conditions-group-whats-your-diagnosis-3065 2022-01-13 18:46:07

dunecitymike

01/14/2022 at 3:17 AM

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dunecitymike

Last activity on 04/07/2024 at 10:55 PM

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"End-stage" emphysema for long enough I don't remember when it was diagnosed but guessing 2008 -/+. Currently 4x/day nebulizer ipratropium bromide and albuterol, supplemental O2 set on 3, daily shot of Trelegy, and an albuterol 'rescue inhaler.' I quit a 2 pack a day smoking habit in 1993.

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Mike Herbert

bretruss

02/09/2022 at 5:56 AM

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bretruss

Last activity on 02/11/2023 at 2:45 AM

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@Sugar67 I'm very sorry to hear. I suffer with COPD not on oxygen yet. I do neb treatments and inhalers right now. I had 2 strokes in 2018 also diagnosed with Functional Neurological disorder and a blood condition where my blood clots easily and causes strokes. I recently had a CT scan. They found a spot on my lung but because it's only 6mm they do a biopsy yet on it they said. It has to get to atleast 10mm smaller than that it can show a.false positive or negative. They are gonna scan again in 3 months to monitor it.

bretruss

02/09/2022 at 5:59 AM

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bretruss

Last activity on 02/11/2023 at 2:45 AM

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@dunecitymike sorry to hear. I too suffer with COPD use neb 2x daily. Just had a CT scan spot found on lung gonna do scan again in 3 months spot is 6mm now needs to get to 10mm to do a biopsy they told me.

Sugar67

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02/09/2022 at 3:06 PM

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Sugar67

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Last activity on 11/24/2024 at 4:02 PM

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I'm sorry to hear that bretruss. I guess where in the same boat Hun. Hope you have a wonderful day.

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Kimberly Ryan

jannie45

02/18/2022 at 6:14 AM

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This group is really informative for me . Thanks everyone.

Mark-IL

04/11/2022 at 9:14 PM

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Mark-IL

Last activity on 12/15/2024 at 4:34 PM

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So just an update

at my last PFT my pulse oxygen dropped significantly when doing the 6 min walk, oops, in prior (3 months ago) reading were at expected levels

so now on 2L oxygen when doing strenuous stuff, exercises, yard work etc.

though I found something interesting, the portable oxygen concentrator that we carry around like a large shoulder bag, or backpack, the filters do not filter out viruses. So I do not use it if I am going shopping or such. Sure put on my mask, then put oxygen tube into nose, and then have the machine suck in room or outside air, floating in such air is who knows, and deliver that straight into my nose and lungs. Yeap. Yes I do have small canisters of oxygen that I could use if needed, but at this point I don’t need unless exercising or very strenuous chores.

tator1999

06/13/2022 at 3:35 PM

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tator1999

Last activity on 11/27/2024 at 1:57 AM

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I have copd chronic respiratory failure sepsis and chronic heart failure I wear a cpap at night and on oxygen and have a catheter from now on due to bladder failure I don’t know how to deal with or understand how it all goes together any help would be appreciated

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tatorhead1999

Gp1961

06/28/2022 at 3:44 AM

Gp1961

Last activity on 03/24/2024 at 5:44 AM

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Hello All! My name is Grace Price and my diagnosis is COPD w/Asthma. I lived in NM at the time where the elevation in Albuquerque is about 5500 feet above sea level and that affected my breathing, along with 45 years of 1 pack a day. I quite in 2018…2 years after my diagnosis. I had a very scary exacerbation. That scared me and I promptly quit. I did get my dr to prescribe Chantix and it worked!

i am excited to be here. Thanks for dropping in.
Grace

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GPrice

Jfpbsr

10/02/2023 at 2:05 AM

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Last activity on 10/06/2023 at 2:29 AM

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66 y/o male diagnosed with IPF in 2022. Started taking Ofev to slow down progression. Considering a lung transplant but it’s a difficult decision. I am pretty healthy except for my lungs.

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Welcome to the respiratory conditions group! What's your diagnosis?

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