Patients Respiratory system

Welcome to the respiratory conditions group! What's your diagnosis?

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Courtney_J

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02/11/2021 at 6:22 PM

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Courtney_J

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Hello everyone,

I thought I'd create this discussion so we can get to know one another better! emoticon cute

In this group you can share your thoughts on respiratory conditions, how you cope with your condition in the day-to-day, how it affects you mentally, anything! If you have any questions you can also share them here!

So, let's introduce ourselves! What is your respiratory diagnosis? How long have you had it? How are you doing today?
@MayorG45‍ @JessPotato‍ @paulah‍ @Mclaugj‍ @Bearguy‍ @Ledae4‍ @esousek97‍ @Virgo76‍ @tonimarshall29‍ @BrerRabbit‍ @Mamawzoo‍ @Flamingo3‍ @snowdove102‍ @Sandywood‍ @Berry12‍ @Jessica45qt‍ @Mimi62‍ @waco48‍ @Sxynsmrt‍ @Granni‍

Let's get the conversation started! emoticon bashful

Take care,
Courtney

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sherrytyler2011

02/22/2021 at 1:11 AM

sherrytyler2011

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I have COPD; have problem breathing; on oxygen 24/7

Welcome to the respiratory conditions group! What's your diagnosis? https://www.carenity.us/forum/respiratory-system/living-with-respiratory-system-disease/welcome-to-the-respiratory-conditions-group-whats-your-diagnosis-3065 2021-02-22 01:11:30

Wendyjustwendy

Edited on 02/24/2021 at 3:42 PM

Wendyjustwendy

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I have COPD with emphysema and mixed sleep apnea . Was diagnosed in 2016 for the COPD and yesterday with the OSA

Nancy2020

02/25/2021 at 3:27 AM

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Nancy2020

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I have COPD and I’m on oxygen 24/7

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Nancy2020

uncleanatol

03/15/2021 at 7:54 PM

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uncleanatol

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I have lived with the diagnosis of COPD for the past 6 or so years now (stupidly smoked cigarettes for 61+ years before I quit, at least a pack a day but often up to two a day). I'm on a prescription inhaler, Spiriva, for the emphysema but sometimes I get a flare-up and the medication doesn't work as well as I would like. I told that to the nurse at my pulmonologist's office. She suggested that I might try taking an over-the-counter Bronkaid tablet when that happens because it was quite possible that I also had bronchitis, which is one of the other problems that often occurs with COPD. However, she absolutely insisted that I also I speak to the pulmonologist before I tried it. So, I asked him about it, he said that it couldn't hurt, and that some of his other patients have had success with it. So, when the Spiriva doesn't do the job within an hour I take a Bronkaid; it works. By the way, I take the medication at bedtime so I can sleep. During the day if I have a problem I do breathing exercises, some given to me by the pulmonologist and others that I've devised myself - problem resolved.

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Judith A Carlson

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uncleanatol

10/13/2022 at 1:20 AM

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uncleanatol

Last activity on 12/17/2024 at 11:32 PM

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@Thakera Yes, it is.

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Judith A Carlson

Rgallagher

03/08/2024 at 2:12 AM

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Rgallagher

Last activity on 12/16/2024 at 9:00 PM

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@uncleanatol I ordered bronkaid

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R Gall

uncleanatol

03/08/2024 at 6:57 AM

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uncleanatol

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@Rgallagher It's available over the counter.

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Judith A Carlson

Rgallagher

04/22/2024 at 6:16 PM

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I to got bronkaid! It helps. I believe it is mostly epinephrin

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R Gall

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Treamorg

03/15/2021 at 9:46 PM

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I have pulmonary hypertension, Asthma and COPD(according to one doctor). I’ve had asthma since I was 3 and the rest since February 2020. I am on oxygen at night and during the day when moving around. “If your feet are moving then you need to have the oxygen on”, my pulmonologist said.

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Thakera

10/13/2022 at 12:16 AM

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Thakera

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@Treamorg Wow, this is my second time only on this website I was hoping to meet more people like me, and I found you. I use oxygen all day too because COPD plus anxiety. Nice to meet you!

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Rgallagher

04/22/2024 at 6:17 PM

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Do you exercise? Or should I say can you? It helps...

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R Gall

Cthiggin2

05/31/2024 at 9:30 PM

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@Treamorg My first visit here. I was diagnosed with COPD two years ago through my annual CAT Scan. At that point, only on "minimal" occasions would I get shortness of breath (pushing lawn mower or lifting a bunch of grocery bags of car. Would rest a minute, breathing through nose and exhaling by pursing the lips. That did the trick. No coughing, no phlem, minimal wheezing. Resting though, my O2 sats were 89 - 92. NO Oxygen.

OK, comes July 2023. My third Afib attack in 15 years. Went to cardiologist next day and I was still in Afib. She gave me Eloquis blood thinner just in case of blood clot???? and another drug to lower heart rate. She felt by that Friday (3 days later) I would be fine. Well I wasn't and for the first time ever my breath was so short I couldn't walk 5 feet w/o stopping to catch my breath. Three days later, Cardioversion, but couldn't do to the fact I had a blood clot in heart. Had to wait a month to do it again and to make sure clot was dissolved. The 2nd cardioversion went fine. I had one full month of feeling better than I had felt in several years. Shortness of breath "gone", attitude good, energy, in fact I was whistling again. Almost 30 days later to the date, I had a real bad day with terrible personal issues and that evening I didn't feel right, and sure enough, I had went back into Afib again. Well, 4 days later, they did another cardioversion, it worked, BUT, I have had the SHORTNESS OF BREATH since that time..................all the testing showed the heart just excellent, just tired nerves causing the Afib. Dr. said she could put me on Multaq, but it had some side effects that she was sure I would not like. She said that the other alternative, Ablation. She said that eventually, I would have to have ablation anyway. So, off to UAB in Birmingham and have the ablation done. The doctor told me wife that he didn't feel I would ever have another afib attack in my life......................................THE SHORTNESS OF BREATH REMAINED as it does today. After more testing (and you are not told that Cardioversion / and-or/Ablation can cause permanent Shortness of Breath), All of a sudden, they say it's my COPD. I said to them that I understood COPD was a progressive disease, and why did I only get the shortness of breath AFTER an Afib attack ???? no answer.

FINALLY: sorry for the long winded overview. They are saying it could be "pulmonary hypertension" since I do show a small amount, and that that would cause the shortness of breath???? They said, IF SO, it can be treated with medication OR they can do baloon angioplasty to stretch the artery out and give you more transfer of blood/oxygen??????????????????????

IS that what they are telling you after your diagnosis of pulmonary hypertension????

Thank you and keep fighting friend. Tom

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Sugar67

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12/18/2021 at 7:09 PM

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I have Asthma, COPD, and Emphyzema and my blood carries carbon monoxide.

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Kimberly Ryan

Sugar67

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12/18/2021 at 7:11 PM

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Merry Christmas and Happy New Year everyone.

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Kimberly Ryan

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Thakera

10/13/2022 at 12:17 AM

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@Sugar67 Thanks for making me smile!

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Mark-IL

12/27/2021 at 7:58 PM

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Mark-IL

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Good after Christmas, hope all had a grand time.

i was diagnosed with Interstitial Lung Disease, and Polumnary Fibrosis, a.one with a few nodules in the lungs, and a los of about 25-30% lung capacity.

as I stated to the polumnologist, so this is what I get for smoking 30+ years, he said, you did not get this from smoking, ok so exposure to various chemicals and powders and irritates, while in the military and working in manufacturing.

currently not taking anything but the occasional usage of albuterol as needed. According to my polumnologist and rheumatologist, this is most likely linked to my RA also.

I Consider my self lucky that this was caught early, I went in because of coughing 200+ times a day, even to passing out, and demanded CT and MRI, which my PCP was not interested in, however it helps to know people in high places, A previous PCP, had just become chief medical officer, and I still had his cell number, one call, that afternoon all scans were completed.

and now I get these scans 3 times a year. So far my progression has been very slow and minimal, though my medical team and I know that it will change and get worse.

so I try and keep myself prepared as possible.

oh and just as an aside, all this has been done through the VA

A Happy New Years to all

uncleanatol

12/28/2021 at 7:04 PM

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I have emphysema, which I gave myself by stupidly smoking from age 10 until I quit at age 71; I'm now 80. So far a medicated respiratory inhaler has given me relief but, as emphysema is progressive even under treatment, it's not working as well as it did. I do the breathing exercises my pulmonologist prescribed and have come up with a number of them myself which he is now prescribing to his other patients. I have held off the "normal" progression; my pulmonologist said in no uncertain terms that as I was diagnosed more than five years ago that I must be doing something right as his other patients who have had it for that long have been on home oxygen for quite some time. My goal is to never need home oxygen but it's a wait-and-see situation. I just take each day as it comes and do the best I can.

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Judith A Carlson

Magdamaria2

01/11/2022 at 8:07 PM

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COPD,Emphysema,Bronchitis,lupus,Spinal Stenosis,HOCM and hEART FAILURE. I had open heart surgery and a pacemaker, and had pnmonia 7 times this year in hospital. i am fully vaxed and boosted and still got covid. It's horrible wen i get a COPD and lupus flare up at the same time

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"Save A life" Adopt A Pet" MagdaMaria2 aka Paws_4_Cause

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Rgallagher

04/22/2024 at 6:23 PM

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My gosh how do you manage? The Bible says God will never give us more than we can bare....you must be an amazing person. I pray you have a strong support system.

Sing your death song like a warrior returning from battle a hero! See you on the other side. God bless your every step.

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R Gall

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Welcome to the respiratory conditions group! What's your diagnosis?

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