Home
Share
Forum
Chronic pain Forum
Living with chronic pain
Family, partner, and friends do not understand - feel alone

Back

Patients Chronic pain

Family, partner, and friends do not understand - feel alone

274 views
26 times supported
25 comments

fibrome

10/13/2019 at 5:15 AM

Good advisor

fibrome

Last activity on 02/23/2024 at 12:23 PM

Joined in 2019

22 comments posted | 7 in the Chronic pain Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

I have fibromyalgia, which causes me to experience pain, which on somedays can be all over my body. I also will get migraines and suffer from intense fatigue.

The friends I used to have do not take much interest in me anymore. Probably because I cancel a lot or just am too tired to do anything after the day is coming to an end. Somedays, I feel like I want to do something, but then end up never doing anything.

My family and some friends say "just deal with it" or "it could be worse." I have also heard "it can't be that bad" or that I am over exaggerating. I have had a difficult time dating also due to this... seems to affect everything.

Thank you for listening and looking forward to hearing from others.

All comments

Go to the last comment

FrancescaZoe

11/14/2023 at 12:00 AM

FrancescaZoe

Last activity on 08/06/2024 at 12:43 PM

Joined in 2020

2 comments posted | 2 in the Chronic pain Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I would like to discuss how to reach and network with people from whom we can choose are own family, one individual at the time.

Family, partner, and friends do not understand - feel alone https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/family-partner-and-friends-do-not-understand-feel-alone-1280 2023-11-14 00:00:39

Becholz66

01/04/2024 at 9:34 PM

Becholz66

Last activity on 09/08/2024 at 7:28 AM

Joined in 2023

7 comments posted | 5 in the Chronic pain Forum

2 of their responses were helpful to members

Rewards

Explorer
Evaluator

View profileView Add a friendAdd Write

I'm sorry. I often feel alone and unheard. I don't have fibromyalgia but I do get migraines that can be terrible. I also wish I could do more but I can't. I don't have any answers. I wish I did.

See the signature

Rebecca Holzapfel

fancynancy

03/10/2024 at 7:26 PM

Good advisor

fancynancy

Last activity on 10/24/2024 at 1:28 AM

Joined in 2024

43 comments posted | 41 in the Chronic pain Forum

14 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer
Evaluator

View profileView Add a friendAdd Write

What you are going through is very real and debilitating. I have been on Lyrica highest dose and 10mg Flexeril 3 times a day is also the highest dose. This is why I am getting a spinal chord stimulator on Thursday. I did a 1 week trial and pain relief was at least 85%. I know I will never be pain free but I feel SCS can help me get some of my life back. Boston Scientific SCS is so good with providing me so much support and I hope procedure goes well as I suspect it will.

See the signature

Nancy Caley

Rinoguy2

03/11/2024 at 6:58 PM

Rinoguy2

Last activity on 08/12/2024 at 7:00 PM

Joined in 2023

1 comment posted | 1 in the Chronic pain Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I understand. I still work because I have to. I'm exhausted and in pain day and night. I don't have a choice. If I didn't work I would be homeless

Members are also commenting on...

dan.varady

Ambassador

10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

See the best comment

Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

See the best comment

MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

See the best comment

dan.varady

Ambassador

10/17/2023 at 2:30 PM

See the best comment

Armor2

05/13/2023 at 5:38 PM

See the best comment

MountainMan

Edited on 03/25/2021 at 8:23 PM

See the best comment

Articles to discover...

03/03/2022 | News

Transcutaneous electrical nerve stimulation (TENS): Everything there is to know!

11/07/2019 | Testimonial

Patient Testimonial: Cluneal Neuralgia - The pain is still there, but so is the fight to stay positive

02/26/2019 | Advice

Relieve pain with hot or cold

10/19/2018 | Advice

Alternative Medicine And Therapies For Pain

08/29/2018 | News

Are you interested in CBD oil to help manage your chronic condition?

10/17/2018 | Advice

Applications to Help in the Fight Against Chronic Pain

10/18/2018 | Advice

Fibromyalgia And Chronic Pain

08/30/2018 | Testimonial

Diagnosed with osteoarthritis at 21

Family, partner, and friends do not understand - feel alone

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...