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Do you have trouble sleeping due to COPD?
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cr90931!
cr90931!
Last activity on 06/15/2020 at 7:08 PM
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I have a great difficulty staying asleep, once I fall asleep. I have tried melatonin, but I still wake up several times during the night. I attribute this to my COPD. I would love to hear if anyone else has this issue also and any advice
In regard to your question about getting to be able to fall asleep - I used to have this problem also. My mind used to race and race; however, believe it or not, what has worked for me is "Sleep Talk - Meditation" on youtube. I have used this https://www.youtube.com/watch?v=Zljg2ptExHc to be able to fall asleep. Not only that channel, but any "Sleep Talk - Meditation" type sound.
I hope that helps you and hope someone else has some advice on how we can stay and remain asleep..
restless98
restless98
Last activity on 07/21/2019 at 4:18 AM
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MY biggest issue is staying asleep... what I usually do when I wake up in the middle of the night is read with soft reading light... I usually immediately fall back to sleep. Don't read on your phone because the brightness is to light... I mean read literally a book with a soft reading lamp so the light does not keep you awake.
copd_healing
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copd_healing
Last activity on 07/03/2020 at 4:18 PM
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Do either of you or anyone wake up though multiple times during the night? I find if it is not related to a cough or needing to go to the bathroom, I still wake up for some reason. Any help?
mr1964
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mr1964
Last activity on 07/06/2021 at 9:50 PM
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I do not sleep straight through the night... that is for certain. I snore and/or cough - depends... kind of both at the same time. The worst is when I wake up, but I cannot fall back asleep and I need to start my day at like 4 am.
lawless
lawless
Last activity on 03/21/2024 at 4:53 PM
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I find that I have trouble ataying asleep not online due to my cough, but I also have to frequently urinate. Does anyone else have an issue with waking up to go to the restroom often?
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Maynerd
Maynerd
Last activity on 09/30/2024 at 4:44 AM
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@lawless Yes I have this problem too! I try to drink most of my water earlier in the day but I do take my little thermos to my bed to sip on when I need to during the night.I think when I lay down it all settles in my bladder even tho I Go alot during the day. I just feel better when I drink water.
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Kim R Oberlie
jramsay100
jramsay100
Last activity on 04/30/2024 at 11:46 PM
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@lawless absolutely. Twice a night
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mrmiles
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mrmiles
Last activity on 05/05/2020 at 10:34 PM
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@lawless This happens to me too. Between that and waking up constantly, my nights are pure hell sometimes. I try to cut off liquids to cut down on the urination, but it doesn't help much, apparently it's related to the drugs we take. I have a white noise machine that I put on when I can't get back to sleep and it helps relax my mind a bit.
jakevan
jakevan
Last activity on 09/02/2023 at 12:17 PM
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I was diagnosed with severe COPD and emphysema at 48. I had LVRS (lung volume reduction surgery) a year later, which I am forever grateful for it actually led me to [This comment has been moderated by an administrator]. I have read some of their stories online before using their natural herbal formula , I had very hard time breathing then, and even more so at night, it was so bad I can’t sleep. I get up with a tight chest that feels blocked and can’t breathe well at all,I was excused from normal life responsibilities but natural herbs really helped but sometimes I think is God prodigy that I was able to treat my Chronic obstructive pulmonary disease but the herbal formula has a big impact on my recovery because my lung condition has been fully reversed. They do things for me, and was too happy to comply with their service. This is an equitable way to get off your COPD emphysema.
lawless
lawless
Last activity on 03/21/2024 at 4:53 PM
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For the past few months I sweat through my clothes and wake up myself and my wife because the bed is all wet... and then i have trouble falling back to sleep without chasngin my clothes...
jramsay100
jramsay100
Last activity on 04/30/2024 at 11:46 PM
Joined in 2024
I have difficulty sleeping all night but I usually wake up because I have to go to the bathroom. I'm awaiting the results of my sleep apnea test although when I did it I didn't need oxygen or CPAP so I'm praying. In the meantime my pulmonologist is making me sleep with oxygen at night which I really hate. I'm an avid traveler and am afraid I might not be able to travel anymore if I need oxygen at night. My POC is pulse only. I need it upon any kind of exertion
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How do you manage COPD during the summer to avoid complications and an exacerbation in symptoms
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
Symptoms and complications of COPD
How do you manage COPD during the summer to avoid complications and an exacerbation in symptoms
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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copd_healing
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copd_healing
Last activity on 07/03/2020 at 4:18 PM
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Hello,
Does anyone else have difficulty sleeping due to COPD? I have great difficulty and sometimes, even if I get 6 - 8 hours of sleep (which is rare), I feel like I am not rested - I wake up several times during the night.
Another thing I have difficulty with is falling asleep.
I would appreciate any input or advice.
Thank you in advance.