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Wearing a face mask with COPD: How do you cope with it?
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lawless
lawless
Last activity on 03/21/2024 at 4:53 PM
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14 comments posted | 12 in the COPD Forum
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@Courtney_J It's been hard for me. I already struggle with breathlessness, but with the mask at first it was even worse. My doctor recommended "practicing" wearing it at home where I'm comfortable and that did help. I at least don't have that feeling of panic when I put it on. I also made sure to get one that's moisture-wicking, because once it gets a bit wet from my breath it makes it even worse. I try to my best to wear it and make my trips out of the house and things quick so I can keep it on and not have issues.
sschlinh25
sschlinh25
Last activity on 09/20/2020 at 4:29 AM
Joined in 2018
I try not to go out to where I have to use s make. When I use a mask I use the kind the dr office gives us. Not the fancy kind everyone wears. They are to heavy and thick. I can bearly breath with any make on. I think when I go to see the dr we should not have to wear a mask. With stage 4 Copd. It’s just wrong.
mrsfjl
mrsfjl
Last activity on 07/05/2024 at 11:58 PM
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3 comments posted | 1 in the COPD Forum
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I manage wearing a mask when I have to. No, I don’t like it, but I believe if everyone would wear one it would help. I only go out when I have to. Mostly, I’m home.
ppaulsy12
ppaulsy12
Last activity on 11/27/2024 at 3:20 AM
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After working in a hospital for 36 years we had to be specially FITTED for a face mask or we were told it would not be useful! Your thoughts on that PLEASE!-PAUL
CarolSchmidt
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CarolSchmidt
Last activity on 09/25/2021 at 7:19 PM
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I use an Inogen which means my air intake is through filters on the machine, which is carried near my hip, so I am not getting any air through the mask. When I exhale most of the air goes out the cannula, too, so I am breathing very little on anyone else.
I do notice where my machine is at all times when I am around others, to keep it from being breathed on by others so I could get the virus through my filters.
Still, I wear a mask every time I go out to set up an environment where we all wear masks all the time, outside of our own homes and cars.
It is so important for all of us to support each other and protect each other. We really need for others to wear masks around us, so we should be just as careful to wear masks to protect others, whether we are showing symptoms or not. At this point, any of us could be contagious.
Ksthy56
Ksthy56
Last activity on 03/13/2021 at 7:42 PM
Joined in 2020
Wearing a mask is good to do with my copd i cant seem to get enough air even on my oxygen and it seems that i wear out easier wearing my mask.i only go out when i must and i live alone so my phone is my only contact
Nannyc
Nannyc
Last activity on 12/19/2020 at 8:22 PM
Joined in 2020
I always wear a mask when I venture outside my home. I also wear my oxygen. Sometimes I do get breathless, I just stop and breath for a while and then continue on. I try not to go out often and when I do, I try to get all I need with one trip.
CarolSchmidt
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CarolSchmidt
Last activity on 09/25/2021 at 7:19 PM
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I finally realized that the intake air for my portable oxygen concentrator is in the side of the machine, not through mynose, and I exhale into the cannula, too. So actually the mask is superfluous.
But I wear it anyway to encourage others to wear theirs, and to not have to explain the workings of my concentrator all the time. It also could be that some of exhaled air in particular goes into the environment. I know that I could be a Covid carrier even if I have no symptoms. I don't find wearing a mask at all of a problem. I m thrilled when everyone I run into all day long is wearing a mask, too.
Now I do have a serious problem as a hearing aid wearer. I have already lost two hearing aids while taking off masks, and now I am using one each of two different sets of hearing aids. (One was donated to me by a friend whose wife died of cancer.)
I am afraid of losing one of my remaining hearing aids, too, and I don't have the money to replace either one.
pu8909
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pu8909
Last activity on 03/21/2024 at 4:21 PM
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Some days it's hard for me to wear a mask with my breathing but I try to get through it anyway, even if it means leaving a store or wherever I am to go outside and take a breather. I think some of my trouble is "stress" or "panic" induced from having something over my nose and mouth. The disposable masks are easier for me because they're not as thin. Stay strong everyone, there's light at the end of the tunnel with the vaccine!
ger365
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ger365
Last activity on 02/03/2022 at 1:25 AM
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@Courtney_J i REFUSE TO WEAR ONE, COVERED BY LAW...IF THEY MAKE ME LEAVE, i WILL NEVER GO BACK TO THAT PLCE, THEY BROKE THE LAW !!!
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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Hello everyone,
How are you today?
I thought I would open this discussion to talk about masks.
It can be difficult to adjust to wearing a mask when going out, especially for those with respiratory conditions like COPD.
Do you find it difficult to wear a mask? Does it aggravate or irritate your COPD? What do you do? Do you have any tips or techniques to make it more comfortable? Has your doctor or respiratory therapist given you any advice?
@Slrdmr1 @randerson801 @Ks1962 @byumimi @lightening1952 @MrSlyde @Msmonica43 @Cherann61 @Annleelee @CorinneButler @thelma69 @bethstitt @Lauraboy62 @hras240 @Keally @roconnor0768 @Hera0301
Feel free to share your experiences and advice here!
Take care,
Courtney