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Do you suffer from emphysema or asthma in addition to COPD?
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Go to the last commentUnregistered member
Thank you for the add. I have stage 4 emphysema my lung function is at 29 percent. I recently was told by a transplant surgeon that at 59 yrs old that I’m not a candidate for transplant n to get my affairs in order. That was a kick in the face. I want to be able to move and walk more then 10 ft without being winded. I’m on 2 liters of 02. And so many inhalers it’s unreali would appreciate any ideas.
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Don’t get discouraged. My husband was told 15 years ago that he was stage 4 plus had 4 blocked arteries and they couldn’t operate because of the copd. He is still going and 82 years old. He did the therapy for copd and has always been on 2 liters of oxygen. He does very little the last couple of years but when he was first diagnosed he kept traveling by car and kept deer hunting in deer season for about 10 years. If you can’t go to therapy look up the breathing exercises on the computer and don’t give up until you have to. Good luck
brthfree
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brthfree
Last activity on 12/24/2023 at 10:47 PM
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Bob please do not get discouraged. Thank you for posting. I am diagnosed with asthma as a child and stupidly, I smoked, and now have what is called overlap syndrome. It is unfortunate, but I am doing my best to exercise and be healthy now and do what I can.
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Wow thank you both so much. My lung Dr.has pretty much written me off. I asked him what my prognosis is n his response was maybe on the outside 4 years. I kind of feel like I’m just being used for a money pit and have for the last 14 years. They push every test they can and when I say no more they get mad but not one of them has offered lung rehab. This one want to keep pushing sleep study which I tried once with him. But he won’t. Listen to me when I try to tell him I sleep about 2 hours then I’m awake due to severe r/a & osteoarthritis. But he would rather try to charge me 265.00 knowing I can’t complete it. So I that you for the encouragement. I will keep on fighting this battle
Lee__R
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Lee__R
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Hello, @BobPreston welcome to Carenity! I encourage you as well and while I do not have COPD, I have had over 10 surgeries because of failed diagnosis from doctors. Did you ever reach out for second opinions or even third?
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Yeah I’ve had a total of 5 second opinions lol
Lee__R
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Lee__R
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That is good. Glad you did that! All I can say is don't give up! I know we are different situations, but my arm was completely dangling for 2 years... 9/10 pain and eventually found a doctor that did the first repair in the country and it worked a great deal. Feel free to reach out here for support
kaderaahin
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Am from Jordan, I was diagnosed with Emphysema (COPD) in 2013 and I have tried all possible means to get cured. I even visited a pulmonologist but to no avail, until I saw a post in a health forum about a herbal clinic from China that prepares herbal medicine to cure all kinds of diseases including COPD and Emphysema. At first, I doubted if it was real but decided to give it a try, when I contacted this herbal doctor via the website which I got an email from them, they sent me the Emphysema herbal formula through courier service, and when I received this herbal medicine they gave me step by step instructions on how to apply it. I applied it as instructed I was totally cured of COPD Emphysema within almost five months of usage. You can as well Contact them on multivitamincare .org
kaderaahin
kaderaahin
Last activity on 09/07/2022 at 6:11 AM
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Am from Jordan, I was diagnosed with Emphysema (COPD) in 2013 and I have tried all possible means to get cured. I even visited a pulmonologist but to no avail, until I saw a post in a health forum about a herbal clinic from China that prepares herbal medicine to cure all kinds of diseases including COPD and Emphysema. At first, I doubted if it was real but decided to give it a try, when I contacted this herbal doctor via the website which I got an email from them, they sent me the Emphysema herbal formula through courier service, and when I received this herbal medicine they gave me step by step instructions on how to apply it. I applied it as instructed I was totally cured of COPD Emphysema within almost five months of usage. You can as well Contact them on multivitamincare .org or (Call/SMS): +1 -956- 758-7882Kind Regards
dunecitymike
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dunecitymike
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Emphysema is a type of COPD (chronic obstructive pulmonary disease). COPD is a group of lung diseases that make it hard to breathe and get worse over time. The other main type of COPD is chronic bronchitis.
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Mike Herbert
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,338 comments posted | 35 in the COPD Forum
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Do you suffer from emphysema or asthma, in addition to COPD?
I look forward to your testimony and discussion.