Lupus Symptoms and How to Mitigate Them

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Lee__R

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11/20/2018 at 6:58 AM

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Lee__R

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Common lupus symptoms include headaches, fatigue, swollen joints, and fever. However, lupus symptoms can come in a wide variety and vary from person to person.

As the symptoms can vary from person to person, so can the prescribed medicines and alternative forms of treatments and medicines individuals use to mitigate the symptoms.

Please share the symptoms you experience and the methods you use to mitigate them

Also, feel free to comment and ask questions to others!

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Marglen

12/17/2018 at 8:08 PM

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Marglen

Last activity on 01/26/2023 at 12:32 PM

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40 comments posted | 15 in the Living with lupus group

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@Ochoar I don’t know. The whole thing is an enigma to me. Just rest as much as you can. Try to eat healthy. Make sure your labs are ok and do one thing at a time.

Sleeping late is the worst thing I can do to myself. I also feel like if I have a day of activity, I need two weeks for recovering. I’ve been dealing with more than one year with this extreme fatigue and YES it is so frustrating, but it didn’t stopped me. This just slowed me down. I need a lot of help in my days and I’m not ashamed to ask for it because I know my limits even though everyone tells me that I look great outside.

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God bless you all!

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-17 20:08:52

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01/04/2019 at 7:54 AM

I notice if I eat anything in the nightshade family (tomatoes, potatoes, paprika, all peppers, anything good, etc.) I have a flare. First it starts with a swollen tongue and throat (but it’s not an allergy attack) then I get a low grade fever and then if I don’t get to bed right then I go down from there to sweating, red hot face, disorientation, and more.

It happens when I don’t eat nightshades too, but less frequently. Family stress is a killer for me.

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-04 07:54:23

Laurag

01/08/2019 at 4:28 PM

Laurag

Last activity on 09/14/2019 at 2:37 AM

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3 comments posted | 3 in the Living with lupus group

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Thank all of you for your post. It has helped me reading everyone's post. I am struggling emotionally with the loss of energy, painful joints and face breakouts. I sometimes just want to give up. I guess the hubbub of the holidays has worn me down emotionally and physically. I have made some big life changes in the past two years. I guess that is wearing me down too. Thanks for letting me vent. It is nice to have people that understand what you are going through.

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-08 16:28:19

Marglen

01/08/2019 at 9:48 PM

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Marglen

Last activity on 01/26/2023 at 12:32 PM

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40 comments posted | 15 in the Living with lupus group

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@Laurag I had done huge life changes recently too due to my condition. Adapt and survive are my mottos now. Becoming vegan, moving to another country with family who truly care, and going to counseling are changes that I needed in my life in order to survive and adapt to my situation. There’s no warranty or the perfect formula to overcome this chronic physical condition but making those changes and put as my priority myself with so much love makes me feel so proud of myself.

thank you for sharing!

xoxo

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God bless you all!

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-08 21:48:39

Laurag

01/08/2019 at 10:48 PM

Laurag

Last activity on 09/14/2019 at 2:37 AM

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3 comments posted | 3 in the Living with lupus group

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@Marglen thank you 😊!

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-08 22:48:48

rabbit1947

01/09/2019 at 1:14 PM

rabbit1947

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Thank you for sharing. I was reading about myself. Tiredness, pain , flares etc. I’m in need of an operation on my spine on Friday, don’t feel I have the strength to handle the whole thing. very nervous about it. 4th one I had due to all this. Also very hard on my husband also. He has health conditions also from service. It gets hard for the both of us to deal. Thxs for listening🥴

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-09 13:14:40

Laurag

01/09/2019 at 6:56 PM

Laurag

Last activity on 09/14/2019 at 2:37 AM

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@rabbit1947 Sending you thoughts for a successful surgery and a speedy recovery. Also sending thoughts of comfort.

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-09 18:56:24

rabbit1947

01/09/2019 at 8:08 PM

rabbit1947

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Thxs so much. This is the last one he can do for me.

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-09 20:08:17

Heavenbound813

01/22/2019 at 9:54 AM

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Heavenbound813

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@rabbit1947 I read one of your inspiring posts. You mentioned you had back surgery. How are you doing?

Much Love

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Heavenbound813

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-22 09:54:19

rabbit1947

01/22/2019 at 12:20 PM

rabbit1947

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It’s been horrible., finially starting to go right direction. I have a horrible bladder infection they couldn’t get under control either. Continuing to heavy urinate. Was working with urologist for months on it. A lot of hill to get thru, Nothing just comes thru anymore, miss being young .. have to keep counting my blessings husband & friends etc.Surgery was a success thought👍

Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2019-01-22 12:20:42

Lupus Symptoms and How to Mitigate Them

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