NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?

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Lee__R

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10/26/2018 at 5:08 AM

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Lee__R

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1,338 comments posted | 17 in the Living with NAFLD and NASH group

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One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

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cinner

12/12/2018 at 12:42 PM

cinner

Last activity on 05/03/2020 at 4:20 AM

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1 comment posted | 1 in the Living with NAFLD and NASH group

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I was told during a gall bladder attach at the ER! Same for me, “you have a mass in your liver, probably just benign fat! No explanation, no plan of care, nothing!

NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2018-12-12 12:42:26

Rpsampson

12/13/2018 at 5:33 PM

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Last activity on 09/22/2020 at 12:59 PM

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7 comments posted | 5 in the Living with NAFLD and NASH group

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@Rpsampson wow

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12/14/2018 at 4:22 PM

Same for me was given no information, no,meds, no plan of care or even what to expect.

Rpsampson

12/15/2018 at 6:01 PM

Rpsampson

Last activity on 09/22/2020 at 12:59 PM

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7 comments posted | 5 in the Living with NAFLD and NASH group

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I was told that for Nash there is nothing out there for me now so I was directed to a research study so that’s what I am doing now. I am a person who is helping the doctors or research company’s trying to find a solution medication that work. Now I have 11 months on a med called selonsitib.

kicknit

12/16/2018 at 4:07 AM

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kicknit

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15 comments posted | 6 in the Living with NAFLD and NASH group

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@Rpsampson how is that medication doing for you?

I have never heard of it? Is it a drug in the experimental stage?

Do you know what it is supposed to do in regard to treating or controlling NASH?

Rpsampson

12/16/2018 at 8:06 PM

Rpsampson

Last activity on 09/22/2020 at 12:59 PM

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Kicknit

You can google selonsitib and you will find lots on line but remember this is a drug still in experimental stages and it is not FDA approved at this time. The hope here for everyone especially the Nash patients is that the drug will help the liver heal especially when you’re at stage 4 like I am. There are other drugs out there to also In study’s so we have lots of hope today. I learned also that 800 IU of vitamin E is also beneficial combination with proper diet and exercise. As of right now my azt and ast blood work numbers are very good so for now I will continue what’s working. Thanks

Dapaluska

12/18/2018 at 3:46 PM

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After reading these posts I feel very fortunate to have had an excellent doctor who took a great amount of time explaining everything. I learned some time later that takeing Allopurinol can help fatty liver disease. Does anyone else have any information about this.

Juhree67

12/19/2018 at 11:33 PM

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Last activity on 08/07/2024 at 7:57 AM

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I was diagnosed 5 years ago,,, was told nothing. What I've learned had been through my own research.

BeachLife18

12/20/2018 at 5:15 PM

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BeachLife18

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24 comments posted | 6 in the Living with NAFLD and NASH group

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In 2017 a small spot was seen on my liver. I was told they could biopsy if I wanted however the procedure causes a lot of bleeding. My other option was to rescan in 6months. Because i had already been in the hospital for 3days. I was ready to go home so decided to rescan in 6 months. March 2018 had another scan that showed no changes and stated that it appeared to be Benign. September was sent to Rheumatologist who did blood work. He saw some concerns and I was sent to Hematologist/Oncologist. The Oncologists did blood work. My LDH level (lactate dehydrogenase test )was extremely high 550 . Normal is 100-190. Because of swelling in my abdomen and pain in the upper part of abdomen a ultrasound was done. The ultrasound showed that i have a Fatty Liver now. The doctor said it is very common and that almost everyone has fatty liver. No Medicine was prescribed, no tratment plan and no recommendation.

giggles

12/29/2018 at 3:28 AM

giggles

Last activity on 01/16/2022 at 9:54 PM

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hi.

i just joined. i wanted to know more about fatty liver. i found out that i have it. i found out that i have it but look at my file online. if my doctor told about it i don;t remember. is there any thing i can do to make it better. stop eating certain foods etc. thanks margaret

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