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Have you gotten RSV? How does it affect someone living with COPD?

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pu8909

12/27/2023 at 7:06 AM

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pu8909

Last activity on 03/21/2024 at 4:21 PM

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Hi -

I am really worried about getting RSV. I got COVID and it nearly took me out.

I'm not in the suggested group for getting the RSV vaccine but I think I may ask for it- What has everyone else done? Have you gotten the RSV vaccine?

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LizziB

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12/28/2023 at 4:36 PM

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LizziB

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Hi @pu8909

How are you doing today?

Here is the CDC site for RSV vaccinations: @Sarabiddy1977 @Evelynferg @Wrightadam33 @Dee055 @Gdad453 @NancyG @Mjdoherty76 @juliemar @Colleen58 @Sans5127 @Cindy23 @Rockinrobynne @maryanne1 @cheysel @glenzamiskaa @Cancerdad-II @Chuterv @ShelleAgrain @kaderaahin @kbsmein @Mel1287 @12elbert @Amathis5 @ggudanowski @Donaldandann @sschey1514 @Pixie530 @Tamara @ger365 @mommyof5 @dee450 @Livingston @gommer1 @Gordon @Maynerd @Shenita @CarolSchmidt @Akfreebird @wymzark @ger365 @dunecitymike @Dr.WhoPeggygmail.com

Take care,

Lizzi from the Carenity team

RSV Vaccination: What Older Adults 60 Years of Age and Over Should Know | CDC

Public info on RSV Vaccination for Older Adults 60 Years of Age and Over

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LizziB

Have you gotten RSV? How does it affect someone living with COPD? https://www.carenity.us/forum/copd/living-with-copd/have-you-gotten-rsv-how-does-it-affect-someone-5669 2023-12-28 16:36:12

Maynerd

01/01/2024 at 1:10 AM

Maynerd

Last activity on 09/30/2024 at 4:44 AM

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I did get the vaccine RSV and had a bad reaction to it 4 days later! I became very ill could nt breath and was life flighted to a different town and bigger hospital. I was admitted and stayed for 13 days. I had pneumonia and on oxygen still 24/7. Never again!

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Kim R Oberlie

Have you gotten RSV? How does it affect someone living with COPD? https://www.carenity.us/forum/copd/living-with-copd/have-you-gotten-rsv-how-does-it-affect-someone-5669 2024-01-01 01:10:06

copding

03/21/2024 at 4:44 PM

copding

Last activity on 03/21/2024 at 4:31 PM

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No I haven't I'm 46, is this something I should know about?

Have you gotten RSV? How does it affect someone living with COPD? https://www.carenity.us/forum/copd/living-with-copd/have-you-gotten-rsv-how-does-it-affect-someone-5669 2024-03-21 16:44:03

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CarolSchmidt

12/21/2020 at 10:35 PM

@KathyA‍, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.

Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!

She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!

Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.

The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.

There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.

Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)

I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!

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cbholder3

12/02/2022 at 3:21 PM

@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

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CarolSchmidt

12/21/2020 at 10:35 PM

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cbholder3

12/02/2022 at 3:21 PM

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

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Have you gotten RSV? How does it affect someone living with COPD?

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