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Outside fall activities and COPD

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zodiac

11/15/2022 at 10:42 AM

zodiac

Last activity on 11/15/2022 at 10:37 AM

Joined in 2018

6 comments posted | 4 in the COPD Forum

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I have a question for those suffering with COPD- Do you have more problems being outside in the fall with your COPD? My mom has it and she claims that she can't come with me and my kids to outdoor fall activities because of her COPD. I wanted to do a day at the farm, like with hey rides, apple cider, pumpkin patch, etc. But my mom chose not to come claiming it makes her COPD worse. I just want to know if that is true or she just didnt want to go.

thanks for your help

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LizziB

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11/15/2022 at 11:13 AM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

Joined in 2022

603 comments posted | 10 in the COPD Forum

24 of their responses were helpful to members

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Hi @zodiac

I think there is a wide range of things that can make COPD worse, cold weather is one of them, so I wouldn't judge your mom too hard for saying "no". But I will open this forum up to other members living with COPD and see what they have to say.

@Morka003 @Johanson820 @misseva1012 @linda4kat @barboh @kookla76 @thollon @TeresaKilpatrick @BrookeShiffi @JamieR @plojata @XinXiaMom @Nonnaof8 @LisaPA @Texy17 @Ngeezee @browniesgirl73 @Ginger0888 @vickyherrlee @Edythe @Glenda3003

What factors make your COPD worse? Is it weather? Seasons? Allergies to certain plants? Particular activities?

Share your experiences!

Take care,

Lizzi

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LizziB

Outside fall activities and COPD https://www.carenity.us/forum/copd/living-with-copd/outside-fall-activities-and-copd-5023 2022-11-15 11:13:00

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CarolSchmidt

12/21/2020 at 10:35 PM

@KathyA‍, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.

Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!

She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!

Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.

The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.

There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.

Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)

I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!

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cbholder3

12/02/2022 at 3:21 PM

@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

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CarolSchmidt

12/21/2020 at 10:35 PM

See the best comment

cbholder3

12/02/2022 at 3:21 PM

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

See the best comment

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Outside fall activities and COPD

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