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Has lupus impacted your working life?

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jasmine1092

02/22/2019 at 1:28 AM

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jasmine1092

Last activity on 11/16/2023 at 1:34 AM

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Hi everyone,

I know each person's experience with lupus is different, but as one with lupus who still works - I am lucky to work from home - Working from home, I still have to take breaks often, but I am worried that I may not have this job for much longer, so I am curious to learn about others.

How many of you here work and what type of work do you do?

How does it affect your work?

Or how long were you working before you decided you could no longer, and what was the last straw?

Thank you all.

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mvn481

08/28/2019 at 4:39 AM

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mvn481

Last activity on 09/02/2023 at 12:01 AM

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@Beckisue Wow Becki that is so much , i got to say i also admire you for that also... i know i said you know your body best but i hope you're not over-exhausting yourself. much strength to you though!

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2019-08-28 04:39:20

jasmine1092

08/28/2019 at 4:56 AM

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Last activity on 11/16/2023 at 1:34 AM

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wow thanks everyone for the feedback. so glad to hear back from everybody. i am still hanging in there working from home and so far i can still do it for the most part . grateful for that.

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2019-08-28 04:56:28

Lee__R

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09/23/2019 at 1:39 AM

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Lee__R

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Does anyone else have experience or story to share about working with lupus?

Do you work? What type of work do you do? How has / does lupus impact your work?

If you are no longer working, how long were you working before and what was the ultimate factor causing the stoppage of work?

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2019-09-23 01:39:20

mvn481

12/26/2019 at 6:11 PM

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Thinking of starting a Facebook group on this subject. Would anyone else be interested in joining?

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2019-12-26 18:11:25

Caprice

01/06/2020 at 7:40 PM

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I had to leave my job in education that I loved... I always fought through the pain and just kept going and then I had a brain aneurysm at work. After being one of the few to survive and a couple of months in ICU I slowly recovered. Luckily I had taken out long term disability insurance but still wanted to try to go back to work.

I went back but after 6 months it was just to much. I was doing 8 hour infusion treatments and realized that I could keep up this pace and die young or retire early and spend time with my grandkids. I made the right choice...

Money is always tight and I wish I could find a part time job I could do from home.

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2020-01-06 19:40:20

Courtney_J

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03/31/2021 at 7:08 PM

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Courtney_J

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Hi everyone,

How are you today? Have you seen this older discussion? emoticon cute

How has lupus impacted your working life? Have you had to adapt the way you work around it? Are your employers and coworkers understanding? Or have you had to stop working because of it?
@Fresh.out.of.Spoons‍ @Dodiel‍ @DeniseLynn‍ @Jackwold‍ @Rachelsara‍ @Kprice8529‍ @Debgaudy‍ @Destiny415‍ @claudke‍ @Stepb1‍ @Shanar‍ @Pixiestyx‍ @JoinerD‍ @Marnetta‍ @Nylahkay21‍ @Twettybird‍ @apriljaycox‍ @Heyzil‍ @amyrose‍ @drIce78‍

Feel free to share your thoughts and experiences here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2021-03-31 19:08:36

Destiny415

04/29/2021 at 3:33 AM

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Hello, lupus really has not change my life that much. I have a very mild case of it. I take my medication on a regular basis and it is helping me. I have not have any bad flare ups. I have pain in the morning when I get up, however after I moved around a little bit the pain eases up.

Has lupus impacted your working life? https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-maintaining-employment-784 2021-04-29 03:33:56

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