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Ondine syndrome Forum

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Medical fact sheet

Ondine syndrome

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Living with a rare disease
Living with respiratory conditions

 Living with respiratory conditions

Coping

avatar Breathmaster

avatar Rgallagher

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with respiratory conditions

Can we be prescribed anything for the anxiety caused by shortness of breath (dyspnea)?

avatar Sunflower1

avatar Bigfoot

avatar Rgallagher

In order to deal with any anxiety during sob episodes, I try to focus on an object while concentrating on deep breathing exercises until it's under control. Works well for me. I'm a firm believer in no more meds than absolutely necessary. 

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 Living with respiratory conditions

Really don't want to know life expectancy

avatar Breathmaster

avatar Jfpbsr

avatar DanielAdkins

 Living with respiratory conditions

Welcome to the respiratory conditions group! What's your diagnosis?

avatar lvirgilio

avatar Cthiggin2

avatar Rgallagher

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with respiratory conditions

Resmed machine no longer taking data

avatar Courtney_J

avatar Nisey69

avatar Susan55

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