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what caused your COPD?
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Somya.P
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Somya.P
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Last activity on 11/22/2024 at 9:23 PM
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Hello @pu8909, how are feeling today?
Thank you for starting this discussion. I think it would be really fascinating to find out what causes COPD can be attributed to in our community! So, let me go ahead and tag a few members who could share their story:
@Cindy23 @Rockinrobynne @maryanne1 @cheysel @glenzamiskaa @COPDAwarenessLaura @Cancerdad-II @fSmith @Chuterv @ShelleAgrain @kaderaahin @KimRottiers @kbsmein @Mel1287 @12elbert @Amathis5 @Marla61 @ggudanowski @Donaldandann @sschey1514 @Pixie530 @Tamara @ger365 @jbull0302 @mommyof5 @anniecarmine2009 @Linda1965 @Lisaisme3 @widowbragg @SusanBaker @mberardesco1166 @Mod1203 @1jody256 @lwallace0628 @Caryn50 @Margo66 @Andejohn @Wassilla @Abbeysgirl72 @Universe53 @Kathy7 @Devildogwife @stellawilson @Classycathy @RogerWi!ll @jocpd1 @Sweetlady63 @Wooten @razzle5150 @RoyTruchon @Ginny13 @AdelineDellaMenefee @Maggie,sson @Terrisfca @Spygirl @CarolnTN @muzzy76 @tylarkate
What do think caused your COPD?
Thank you for letting us know and take care, everyone!
Somya from the Carenity team
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Somya from the Carenity team
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Breathmaster
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Breathmaster
Last activity on 11/22/2024 at 2:33 AM
Joined in 2024
Patient, COPD since 2024
Other conditions: Asthma, Respiratory allergies + 1 other condition
46 comments posted | 6 in the COPD Forum
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@Somya.P i believe because I was born. I have had a breathing challenge since I was a baby and that is why I am qualified to be a member of Chronic Obstructive Pulmonary Disease group. I have been at and sometimes in Death’s Door.
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Mark S
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copding
copding
Last activity on 03/21/2024 at 4:31 PM
Joined in 2024
pretty sure it was my factory job, also my area isn't the best airwise
smoked a bit when I was younger but I've seen guys do it way more than me perfectly healthy that's what annoys me
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Kekekim
Kekekim
Last activity on 06/22/2024 at 7:59 PM
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3 comments posted | 2 in the COPD Forum
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@copding i agree i seen ppl smoke for years and have no trouble
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kim henneck
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Kekekim
Kekekim
Last activity on 06/22/2024 at 7:59 PM
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they said smoking did but i dont think so it might have caused it to be more intense but i think it was job related and my health issues
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kim henneck
Rgallagher
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Rgallagher
Last activity on 11/21/2024 at 12:57 AM
Joined in 2024
33 comments posted | 7 in the COPD Forum
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My COPD was brought on by continuing to work 70 plus hours a week with no vacation for over 17 years. Coupled with the last few years rehabbing well pretty much crack house without knowing the danger.
Culminated to a 26 day stint in the hospital of which 14 days we're in a coma.
I retired from working. I still own my company but do not participate anymore. I spend my time working on my health.
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R Gall
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Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 10 in the COPD Forum
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@Rgallagher Hi, I’m really sorry to hear about your experience, especially with the work stress and hospitalization. It’s good to know you’ve stepped back from work to focus on your health now. How have you been feeling since?
Take care,
Somya from the Carenity Team 🌼
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Somya from the Carenity team
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gommer1
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gommer1
Last activity on 11/10/2024 at 9:04 PM
Joined in 2020
32 comments posted | 6 in the COPD Forum
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they blame it in smoking and I do from time to time but I blame 5 years working with asbestos second hand smoke and 12 years exposure to Formaldehyde and at least 9 other carcinogens building cabinets I actually had cancer twice
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Somya.P
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Somya.P
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Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 10 in the COPD Forum
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@gommer1 Hi, thank you for sharing your story. This must have been incredibly difficult to deal with, especially after fighting with cancer twice. How are you managing your health today?
Take care,
Somya from the Carenity Team 🌼
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Somya from the Carenity team
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Maynerd
Maynerd
Last activity on 09/30/2024 at 4:44 AM
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Mine was mostly from smoking i thought Also learned that when I heated with a wood stove and used coal for heat for years that this is not good either it can cause COPD also so I would say both are the cause!
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Kim R Oberlie
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Somya.P
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Somya.P
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Last activity on 11/22/2024 at 9:23 PM
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385 comments posted | 10 in the COPD Forum
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@Maynerd Hi there, thank you so much for sharing.
Have you noticed any improvements after changing your heating methods?
Take care,
Somya from the Carenity Team 🌼
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Rhea60
Rhea60
Last activity on 11/14/2024 at 8:37 AM
Joined in 2024
Most definitely smoking! I have been smoking for 50+ years and it's been so difficult to quit! You would think facing death would do it but I've tried so many times and can't seem to do it.
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Rhea
Rhea60
Rhea60
Last activity on 11/14/2024 at 8:37 AM
Joined in 2024
Most definitely smoking! I have been smoking for 50+ years and it's been so difficult to quit! You would think facing death would do it but I've tried so many times and can't seem to do it.
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Rhea
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Somya.P
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Somya.P
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Last activity on 11/22/2024 at 9:23 PM
Joined in 2023
385 comments posted | 10 in the COPD Forum
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@Rhea60 Hi there,
Thanks so much for sharing. Quitting smoking is such a tough battle, sometimes it becomes a response to the stress itself. Have you tried any new strategies recently?
Take care,
Somya from the Carenity Team 🌼
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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pu8909
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pu8909
Last activity on 03/21/2024 at 4:21 PM
Joined in 2018
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was it smoking, your job hazards, the alpha-1 antitrypsin deficiency, underlying health issues... what do you think contributed to it ?