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COPD and the Coronavirus - recommendations, concerns, advice
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 30 in the COPD Forum
6 of their responses were helpful to members
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@Mcardona1954 Hello Mcardona1954, That sounds like a fun way to get out and get some exercise!
Hello members, I hope you don't mind that I've tagged you! How are you doing? Keeping your chins up despite these difficult circumstances? Do any of you have any fun tips to stay active or to pass the time?
@Cokebarb62 @Dmonske @ctardif @reneepinto11 @Sandragrimm @Crickett @sukie1821 @Ermaltackett @mames350
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
Max2020
Max2020
Last activity on 04/10/2020 at 4:22 PM
Joined in 2020
Hi! I have COPD as well as being a lung cancer patient. I have just finished my last immunotherapy treatment. I have been following all the protocols for this virus. I also monitor my oxygen level and heart rate daily. So far I am doing okay. I worry as my husband is a truck driver and I know he doesn't take this seriously and does not take the necessary precautions.
Polly60
Polly60
Last activity on 04/07/2020 at 5:52 PM
Joined in 2020
I Drive a City Bus and I don't understand why the paid leave stay at home order doesn't apply for me because of my COPD. I know this is an essential business for people but I am at more risk of dying if I catch this Virus.
Crickett
Crickett
Last activity on 04/07/2020 at 6:34 PM
Joined in 2020
Hello am CrickettAnd I have COPD asthma weak heart arthritis fibromyalgia high blood pressure and my glands over my kidneys are bad and my kidneys are weak and I worry every day about everything that’s going on in the world but I keep my chin up I hope my neighbors if I can I walk around my parking lot for exercise or use oxygen at night I take over right so 19 medicines a day or two inhaylers And I just want to let everybody know I wear my mask when I go out in public when there’s a lot of people I wash my hands a lot and change my clothes a lot so please just bear with the state and the government God’s got this that’s what you Gotta keep thinking thank you
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Vera durbin
Meerkat8317
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Meerkat8317
Last activity on 04/12/2020 at 1:27 AM
Joined in 2020
6 comments posted | 1 in the COPD Forum
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Honestly, I’m kind of worried about this coronavirus. I have COPD and MS, along with several other things, but the part that has me concerned is I have to go to the hospital once a month to get an infusion of medicine to treat the MS. The medicine is a biologic, which is an immunosuppressant. I do what I can to follow the guidelines and keep myself safe, but there’s still times that I will have to be in public and around other people.
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Meerkat8317
Pennypoo
Pennypoo
Last activity on 05/01/2020 at 7:33 PM
Joined in 2020
Hi I’m Penny from Iowa this virus scares me because at high risk stage 3 copd. And we have 3confirmed cases. So I have chose to stay home. But just started in February so hoping I can get that care unemployment. Plus was with out inhalers for 2 days cause lung dr wouldn’t give me samples or refill cause missed my 6 month a appointment cause no insurance and working in texas
ETHELI
ETHELI
Last activity on 11/05/2024 at 6:19 PM
Joined in 2020
@Pennypoo
What inhalers do you use ?
Pennypoo
Pennypoo
Last activity on 05/01/2020 at 7:33 PM
Joined in 2020
MJones99
MJones99
Last activity on 02/09/2022 at 1:15 AM
Joined in 2020
I have severe copd and I am scared of catching this virus but cant get any straight answers on what I should be doing on staying home. I dont think I should have to use all my fmla time due to this unforeseen circumstance. If anyone has any suggestions or advice would be greatly appreciated.
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Michelle Jones
methabused
methabused
Last activity on 04/25/2020 at 2:01 PM
Joined in 2020
I have chronic COPD, 66 yrs old, quit smoking Jan. 10 and also have hypertension and generalized anxiety disorder. I have a meth smoker living below me in this apartment building and have reached out to management, police, the DEA and the Minnesota Health Department, all of whom have not been able to help me. You need proof, says management, conducted a professional meth test above where he smokes it most and turned out a 4 on scale of 0 to 10, 0 being the most meth and 8 and below i no presence of meth. So it was substantive evidence of meth. Member of Drug Task Force came out and could not detect any meth in his apartment and said he could not even get a search warrant for local pseudo ephedrine purchases without more evidence. What's my next step? Am scheduled to a move to a different apartment in this building May 15, but I truly fear the meth is compromising my immune system and lung.s Watery yes, runny nose, smoke-filled lungs, stomach ache!!!! What to do I do next? Try contacting the health department again?
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 30 in the COPD Forum
6 of their responses were helpful to members
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Hello everyone,
Patients with chronic respiratory diseases such as COPD are part of the population at risk of complications from Coronavirus infection. It's really important to follow recommendations and guidelines published by the CDC and other health organizations in order to best protect ourselves from infection.
Feel free to consult our two recent articles on the coronavirus and chronic illness for more information:
Coronavirus: What do you need to know?
Coronavirus and chronic illness
I've created this discussion so we can ask any questions or concerns about the current pandemic or just generally share our feelings about what is going on.
Have you consulted the recommendations? Who informed you first: you doctor, your pharmacist, a relative? Have you been taking any particular precautions? Have you been self-isolating? Do you have any advice for others?
Take care,
Courtney
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