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Diabetes, Hypertension, and COPD - announcing my goal to help me succeed
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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@Gordon Hope all is well! I am glad to see that you have had success with starting the Nutrisystem Diet and changing eating habits and working toward your goals! I know it has been almost a year since your last post, so hoping to see of any update to your story!
mr1964
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mr1964
Last activity on 07/06/2021 at 9:50 PM
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16 comments posted | 7 in the COPD Forum
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@Gordon amazing! Very happy to see how much this life change has done for you! I am looking forward to your next update! Your story has inspired me to push harder and stick change for the better in my diet, activity, and social life.
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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Gordon
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Gordon
Last activity on 12/04/2024 at 12:53 AM
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I smoked most of my life. I started when I was about 10. By 16 I was a pack a day smoker. Sometimes two packs a day. I really enjoyed smoking throughout most of my life, unless I was in the Urgent Care, doubled over with acute Bronchitis. Tried to quit numerous times in the past, but was unable to, until about ten or so years ago when my right lung collapsed completely. Eight days in the hospital with a chest tube, morphine, steroids and heavy doses of anti-biotics I was able to quit smoking. Haven’t smoked since. Haven’t had the desire to or any cravings for it.
Fast forward ten or so years. I have gained nearly 100 pounds, have been diagnosed with COPD, Hypertension, Diabetes and the wonderful ailments that go with it like edema (swelling and fluid retention) in the lower legs, neuropathy (mainly in the legs), and high cholesterol. Had to stop taking the cholesterol drugs when it was determined that I had some adverse reactions to them (after 5 years) causing an increase to one of the blood proteins called creatine kinase. This little addition added some wonderful and very painful muscle cramps throughout my body for several weeks. The severe cramps started 5 months after I stopped taking the cholesterol drugs. Not including the cholesterol drugs, I take 9 prescription medications today, plus sleep with an oxygen generator to keep my O2 above the level of respiratory failure.
So recently I started monitoring my blood sugar again and fear that the next Dr. visit will have me on insulin between meals. Been reading up on different diets and schemes to lower the blood sugar, lose weight, etc. Looking for the easy way out. So here I am today, September 30, 2018, the eve of October the first, 2018. My lovely wife of 35 years has been very patient, caring and loving throughout our marriage. Quietly prodding me to lose weight as the pounds piled on. (I love to cook and eat food!) So last week I broke down and ordered the NutriSystem for men with diabetes. Started today! The food is not bad. You eat a small deliberate portion every 2 hours or so. Mostly the prepared food that they sell you, but supplemented with fresh vegetables, fruits, etc. You can add smart carbs, lean proteins, all the vegies you can imagine. And I can still have my two cups of black coffee in the mornings…
OK, so why am I telling the world this? It is because I have committed to lose weight and I now have a goal. Much the same as quitting smoking 10 years ago, my goal today is to lose 100 pounds and get off of the ten prescription medications I currently take daily. We both retired this year and are looking forward to watching our youngest grandchildren grow up. I want…I need to be around for the next 10 or 20 years to see them grow up. So, announcing my goal is to help force myself to succeed.
Thanks for listening. Will update monthly if I can.